The pictures above were initially posted on this site on May 26, 2012, several months before Conor’s 1st known Grand Mal Seizure in November. As I posted then, external conditions were perfect and Conor was enjoying a favorite activity in a favorite location when he suddenly began hitting himself in the head. I don’t know what caused it, Conor lacks the communication skills to explain, but it was definitely internal. Together with many similar circumstances including sudden closing of his eyes and looking blankly into the distance I reported them to his pediatrician as possible seizure activities. The pediatrician did (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism and Seizures: Conor’s Second Grand Mal Seizure (That We Know Of)
Intellectual Disability remains the Elephant in the Autism Living Room;no one wants to admit it’s there or to talk about it It is politically incorrect in today’s autism world to acknowledge the existence of the invisible autistics, the one’s unlike Ari Ne’eman, John Elder Robison, Alex Plank and Michelle Dawson all of who whom have enjoyed great success and demonstrate considerable intelligence and most of whom have never met a television camera or gathering of journalists that offends them. Some of the extremely high functioning superstars of autism “self” advocacy have literally built careers telling the world (Read more…)
A study presented at the IMFAR 2012 conference this spring in Toronto, Underdiagnosis of Autism Spectrum Disorders in Individuals with Intellectual Disabilies, seems to provide evidence contradicting the widely propagated assertion that the DSM-IV era has seen autism incorrectly diagnosed as a substitute diagnosis in many cases of intellectual disability. Roeyrs and Thys actually conclude that autism is UNDER diagnosed in a large study of persons with intellectual disability. If the study results are confirmed it seems likely the harmful impact of the express, and intentional, targeting for exclusion of severe intellectually disabled from the DSM5 autism spectrum . . . → Read More: Facing Autism Symptoms in New Brunswick: UNDERdiagnosis of Autism Spectrum Disorders in Individuals with Intellectual Disabilities
If you believe IACC Neurodiversity advocates present and past, Ari Ne’eman and Matthew Carey, autism is not something that should be cured. You won’t see much about the harsher aspects of life with autism disorders if you read their writings. In their view autism is nothing more than a different way of thinking, not a … disorder … or group of challenging symptoms for which cures are needed.
No, the enlightened Neurodiversity thinkers who are selected to represent the mythical “autism community” at the IACC see autism in the image of the members of the ASAN Board of Directors, . . . → Read More: Facing Autism Symptoms in New Brunswick: The Harsh Reality End of the Autism Spectrum
The Interagency Autism Co-ordinating Committee (IACC) plays an important role in autism research and understanding. It is unfortunate that sitting as a public member of the IACC is lbrb blogger Matthew J. Carey, a member of the Neurodiversity movement which, at its core (1) portrays autism as a different way of thinking not a disorder or disability and (2) belittles efforts to seek cures for autism. His official bio posted on the IACC web site emphasizes his considerable background as an industrial researcher and his deep commitment to “communicating the importance of getting the science right for autism“. The . . . → Read More: Facing Autism Symptoms in New Brunswick: IACC Neurodiversity Member Matt Carey Single-Handedly Reduces Intellectually Disabled To A "Small Segment of the Autistic Population"
“Autism Spectrum Disorder Must meet criteria A, B, C, and D: A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:” Autism annual reviews have been published by a number of sources most of which ignored or mis-characterized the most important autism event of 2012. The most important event by far and the one with the most negative implications for those who actually suffer from autism symptoms was the APA approval, on Saturday, December 1, just before the holiday season, of the DSM5 . . . → Read More: Facing Autism Symptoms in New Brunswick: Autism 2012: Disaster for the Autism Spectrum’s Intellectually Disabled
Autism Specifics Press Release, April 1, 2020:
Autism Specifics President “Aristotle” Newman and ASAN President Dr. Jerry Dobson will be jointly reflecting today on important events in the autism world during the past year.
1. First anniversary of DSM5.13 This year marked the first year since the DSM5 that a revised edition of the DSM5 has endured an entire year without being modified. Changes introduced by the classic, original DSM5 were revolutionary, particularly with the steps taken to exclude the intellectually disabled from the autism spectrum, but revisions were introduced periodically to deal with oversights in the classic . . . → Read More: Facing Autism Disorders in New Brunswick: Autism Awareness Day April 1, 2020
The American Psychiatric Association’s passage of the DSM5 and its New Autism Spectrum Disorder was passed Saturday December 1, 2012 without any of the mainstream media taking noting of the real targets, the real victims of the new Autism de… . . . → Read More: Facing Autism Disorders in New Brunswick: Congratulations "Dr." Catherine Lord! APA’s DSM5 Autism Targeted Exclusion of Intellectually Disabled Passed December 1, 2012.
If you believe the DSM5 Neurodevelopmental committee responsible for expressly removing those with Intellectual Disability from the new, oversimplified Autism Spectrum Disorder when they claim that exclusion is based on current science you may wan… . . . → Read More: Facing Autism Disorders in New Brunswick: DSM5 Autism Exclusion of ID? Study Finds Single Gene Mutation Known To Cause Intellectual Disability Increases Risk of Autism Disorders
Four years ago, in Autism’s Outcasts, I wrote about the exclusion from public consciousness, and from autism research, of those with autism and intellectual disabilities. I am re-posting the research portion of Autism’s Outcasts below. The comment overall talks about the media tendency, as demonstrated at that time by CBC and CNN, to exclude the harsher realities of severe autism, including those with associated with intellectual disability, from their generally feel good portrayals of autism disorders. At the time I was unaware that the DSM5 autism “experts” would soon thereafter take steps to officially cast the intellectually . . . → Read More: Facing Autism Disorders in New Brunswick: Autism Research Bias, Autism’s Outcasts And The DSM5 Autism Do-Over: Shame on the APA
Emily Singer has published an article at SFARI, Proposed guidelines won’t miss autism cases, study says, which appears to suggest that persons who would meet DSM-IV PDD-NOS and Asperger’s will “only” be reduced by approximately 10% under DSM5 criteria. The focus, as always, is on the HF end of the spectrum with no mention made of the intellectually disabled who will be excluded under the wording of mandatory criterion A of the DSM5. ”We didn’t see any evidence that there would be dramatically lower diagnosis of people with Asperger’s or PDD-NOS,” says Lord.”
Catherine Lord has
. . . → Read More: Facing Autism Disorders in New Brunswick: More Confirmation of Targeted Exclusion of Intellectually Disabled from DSM5 Autism Spectrum Disorder: But NO ONE CARES
Autism researcher bias exists and its effect, when the DSM-5 takes effect in 2013, will further the redefinition of autism as social awkwardness and the exclusion from the autism spectrum of persons with severe intellectual disabilities.
David Kupfer, M.D., chair of the DSM-5 Task Force, has stated that “the proposed ASD criteria are backed by the scientific evidence“. Dr. Kupfer was not addressing the exclusion of the persons with autism and severe intellectual disabilities when he made that statement. He was responding to the criticisms that the new Autism Spectrum Disorder would target high functioning . . . → Read More: Facing Autism in New Brunswick: Autism Researcher Bias and the Targeted Exclusion of Intellectually Disabled in the DSM-5 Autism Do-Over
Some of the people referenced in this post are affiliated with Autism Speaks. TPGA does not consider Autism Speaks an organization that benefits autistic people. -SR
I am not sure what constitutes “Thinking” at the “Thinking” Persons Guide to Autism. The above quote from “SR”, Shannon Des Roches Rosa, precedes a blog comment by Carol Greenburg, a TGPA sponsored blogger at the recent IMFAR 2012 conference in Toronto. I attended IMFAR courtesy of Autism Speaks and found the conference to be an amazing experience. (Although attending courtesy of Autism Speaks my attendance still cost . . . → Read More: Facing Autism in New Brunswick: "Thinking" Persons Guide to Autism Issues Proclamation Declaring Autism Speaks Does Not Benefit Autistic People
Today was DSM5 Autism Do-Over Day at IMFAR 2012. Dr. Susan Swedo, head of the DSM5 committee that drafted the DSM5 Autism Spectrum Disorder, spoke twice today, once at a stakeholder’s luncheon and afterwards at an oral presentation in the Grand Ballroom. Dr. Swedo replied to my questions after the second presentation and indicated that the DSM5 Autism Spectrum Disorder will exclude some, though not all, intellectually disabled from an ASD diagnosis. I attended both events but did not have an opportunity to question Dr. Swedo during the luncheon as the event was simply running out of time. During the . . . → Read More: Facing Autism in New Brunswick: DSM5 Autism Day At IMFAR 2012: Swedo Confirms Some Intellectually Disabled Will Be Excluded from DSM5 Autism Spectrum Disorder
The caption below the picture of me and Conor is from the CBC web site article Autism advocate questions ‘extreme’ inclusion model.
“A high-profile autism advocate in New Brunswick is questioning the merits of what he calls the Department of Education’s extreme inclusion model. “I believe that the kind of evidence-based intervention that we need for our children, in some cases children with autism, is absolutely necessary and to deny it is a denial of the human rights, basically, of children like my son,” he said. Doherty was responding to a recent statement written by Gordon Porter, the former . . . → Read More: Facing Autism in New Brunswick: CBC: Autism advocate questions ‘extreme’ inclusion model
Swedish Flag by Matti Mattila A major Swedish study offers uncomfortable news to the DSM-5 team trying to pretend there is no relationship between autism and the intellectual disability which affects the vast majority of those with classic Autistic Disorder. It will also be disconcerting to those who devoutly believe that autism is 100% genetic. The study finds that children born of immigrants to Sweden had an increased risk of developing autism with intellectual disability. The study authors also conclude that autism is governed by environmental as well as genetic factors:
A major register study from the Swedish medical . . . → Read More: Facing Autism in New Brunswick: Autism, Intellectual Disability & Environment: Children of Immigrants in Sweden At Greater Risk of Developing Autism with Intellectual Disability
When I first pointed out that the DSM-5 New Autism Disorder would exclude intellectually disabled I was ignored by most, insulted and mocked by others. Some were annoyed. When Catherine Lord confessed that the intellectually disabled were the real target for exclusion very few mentioned the exclusion of the intellectually disabled from the DSM-5 autism definition. Certainly not the New York Times and other prominent Mainstream Media institutions which have wrong their hands over the possible exclusion of the very high functioning Autism ruling class. When Fred Volkmar, who kick started the current uproar over the possible exclusion of . . . → Read More: Facing Autism in New Brunswick: Volkmar Says Many Intellectually Disabled May Be Excluded from DSM-5 Autism Spectrum Disorder Diagnosis
Catherine Lord, and her highly influential views about autism and intellectual disability seem to have changed a bit since the 2003 article published below and the DSM-5 Autism Do-Over which will be published in 2013. For those who quibble over the reference to 2013 as being “now” they should know that Dr. Lord and the DSM-5 subcommittee have no intention of changing any of the wording of the DSM-5 Autism Do-Over which will take effect in 2013. For the intellectually disabled the future is now, they are no longer part of the autism spectrum.
As Dr. Lord has already . . . → Read More: Facing Autism in New Brunswick: Intellectual Disability and the DSM-5 Autism Do-Over: Catherine Lord Then (2003) and Now (2013)
FOX News has published a report, Some Experts Worried Over Revised Autism Guidelines, in which two autism experts, Dr. Keith Ablow, a psychiatrist and Fox News contributor, and Dr. Thomas Frazier, who treats children with autism at the Cleveland Clinic Children’s Hospital, express their concerns about the possible impact of the DSM-5`s new Autism Spectrum Disorder category on high functioning autistic children. They are concerned that some high functioning autistic children might lose their diagnoses, and access to autism specific education services, although the FOX report does not provide much detail on the basis for their concerns:
“These . . . → Read More: Facing Autism in New Brunswick: FOX News Autism Experts Worry About DSM5 Impact on High Functioning Autistic Children, No Concern for Low Functioning Autistic Children
Amy Harmon and the New York Times like their autism fluffy and lite, none of that yucky severe autistic disorder stuff You wouldn’t know it from reading NY Times columnist Amy Harmon, or from reading the NYT generally, but 70% of persons with Autistic Disorder suffer from intellectual disability. Approximately 30% of persons with Autistic disorder also suffer from epilepsy. There are regular reports, in non NYT papers anyways, about autistic children and adults going missing, sometimes never to safely return. Self injury is a serious problem for many. For many others lives spent in institutional care is the reality . . . → Read More: Facing Autism in New Brunswick: Autism Fluffy and Lite With Amy Harmon and The New York Times
Conor Doherty, one of Autism’s Vast Majority of Invisible Autistics, brings joy to Mom and Dad in the Christmas season and throughout the Year. My 2011 Christmas wish is that Autism’s vast majority, the 70-80% with autistic disorder and intellectual disabilities, will lose their status as autism’s invisible autistics. It is a wish that will grow farther from fulfillment as the American Psychiatric Association stands poised to obliterate the original autistics and replace them in the DSM5 with its Aspergers Spectrum Disorder hidden under the label Autism Spectrum Disorder. It is a big wish and one which will not . . . → Read More: Facing Autism in New Brunswick: Autism Reality NB’s 2011 Christmas Wish for Autism’s Vast Majority
The DSM-IV and popular media interpretation of the autism disorders (pervasive developmental disorders), have encouraged the wor… . . . → Read More: Facing Autism in New Brunswick: Autistic Disorder and Intellectual Disability: 70% Is Not a Coincidence, It Is a Vast Majority
The DSM-5 is formalizing a shell game which has seen Asperger`s substituted for Autism in the mainstream media for many years. The most recent media example comes courtesy of the UK government`s National Health Service which, whil… . . . → Read More: Facing Autism in New Brunswick: UK’s National Health Service Misrepresents Autism
Stephanie of Autism and Oughtisms has posted a guest comment on the site Teaching the Teachers, Educating an Autistic Child is an Opportunity, in which, like many other parents and professionals, she includes a commentary which distances autism d… . . . → Read More: Facing Autism in New Brunswick: Parents and Teachers Should Not Be Misled: Autism, For Now, Includes Those With Intellectual Disability