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Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He . . . → Read More: Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I kn… . . . → Read More: Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

Facing Autism in New Brunswick: Autism, Intellectual Disability and Seizures, When Together, Constitute ONE DISORDER

In the picture above, taken 3 years ago my son erupted in sudden self injurious behavior smashing himself violently in the head a split second after he had been on the swing at his old grade school, Nashwaaksis Memorial School; a split second after he had been very smiling and happy. I captured . . . → Read More: Facing Autism in New Brunswick: Autism, Intellectual Disability and Seizures, When Together, Constitute ONE DISORDER

Facing Autism in New Brunswick: Severe Autism With Intellectual Disability And Epilepsy Can Be Tough But It’s Still a Wonderful World

My Son Conor Wore The Blue on World Autism Awareness Day I understand some of the criticisms of the day and of thinking that wearing a color in itself creates autism awareness but as long as people  raise real autism awareness of the challenges of autism disorders and  the related  conditions from which . . . → Read More: Facing Autism in New Brunswick: Severe Autism With Intellectual Disability And Epilepsy Can Be Tough But It’s Still a Wonderful World

Facing Autism in New Brunswick: Autism Disorders and the 1st International Epilepsy Day, February 9, 2015

Monday, February 9, 2015 is the first International Epilepsy Day,   a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE)  scheduled to occur annually hereafter on the second Monday in February to promote epilepsy awareness around the world.   Epileptic seizures are much more common . . . → Read More: Facing Autism in New Brunswick: Autism Disorders and the 1st International Epilepsy Day, February 9, 2015

Facing Autism in New Brunswick: Autism Society Canada Misrepresents Autism On Its Web Site Makeover By Hiding The Many with Autism AND Intellectual Disability

The Autism Society Canada web site was down briefly and I had hoped, notwithstanding past experience, that the ASC would have started presenting an accurate picture of autism disorders to the Canadian public and families with autism disorders. My hopes, faint as they might have been, were dashed again.  ASC, on its “new” web site . . . → Read More: Facing Autism in New Brunswick: Autism Society Canada Misrepresents Autism On Its Web Site Makeover By Hiding The Many with Autism AND Intellectual Disability

Facing Autism in New Brunswick: So Called Autism Brain Study Excluded 50% of the Autism Spectrum, Those With Intellectual Disability

Credit (or Discredit) Carnegie Mellon University What’s Wrong With This Picture? It Omits 50% of The Autism Spectrum, Those with Intellectual Disability The picture above, credit (or discredit) to Carnegie Mellon University,  is from a Science Daily review article  Brain representations of social thoughts accurately predict autism diagnosis which reviews an MRI study published in . . . → Read More: Facing Autism in New Brunswick: So Called Autism Brain Study Excluded 50% of the Autism Spectrum, Those With Intellectual Disability

Facing Autism in New Brunswick: Joy of Conor 2014

I will not pretend, I will never pretend, that autism is just a different way of thinking.  Heather and I love our son too much to lie to the world about the nature of his autism realities, his severe autism, intellectual disability and epileptic seizures.  Like many parents of autistic children I believe it . . . → Read More: Facing Autism in New Brunswick: Joy of Conor 2014

Facing Autism in New Brunswick: DSM5 ASD Criterion D: No Clinically Signifcant Impairment in Current Functioning = No Autism

The DSM5 is certainly open to criticism; particularly in its combining of the pervasive developmental disorders into one Autism Spectrum Disorder ignoring the very large numbers of persons with DSM-IV Autistic Disorder who also suffer from Intellectual Disability.  One point which did make sense in the Autism Spectrum Disorder diagnostic criteria though is the . . . → Read More: Facing Autism in New Brunswick: DSM5 ASD Criterion D: No Clinically Signifcant Impairment in Current Functioning = No Autism

Facing Autism in New Brunswick: JAMA Study: $2.4 Milliion (US) Lifetime Cost of Care for Person with Autism and Intellectual Disability

JAMA study points out US lifetime costs of care for a person with autism disorder and intellectual disability will approximate $2.4 million US (ASD W/Out ID #1.4 million). For children special education and parental productivity loss were largest cost components. For adults residential care, supportive living accommodation individual productivity loss and much higher productivity . . . → Read More: Facing Autism in New Brunswick: JAMA Study: $2.4 Milliion (US) Lifetime Cost of Care for Person with Autism and Intellectual Disability

Facing Autism in New Brunswick: Conor’s 3rd Tonic Clonic (Grand Mal) Seizure

Two and a half hours ago Conor suffered his 3rd Tonic Clonic or Grand Mal seizure.  (He also suffered an episode of rhabdomyolisis, a serious adverse reaction to his previous seizure medication).  On the previous 2 seizures Conor was in a room by himself when they started, this time he was with me in the . . . → Read More: Facing Autism in New Brunswick: Conor’s 3rd Tonic Clonic (Grand Mal) Seizure

Facing Autism in New Brunswick: For CNN and Francesca Happé Adult Autism Is A Bouquet of Pretty Pink Flowers

CNN which loves to portray high functioning autism and Aspergers as autism has done it again with a feature called “Autism Is Growing Up” which … of course … features only adult persons with High Functioning Autism and Aspergers.  In fact CNN and its accomplice Francesca Happé present 7 full stories of persons with high functioning . . . → Read More: Facing Autism in New Brunswick: For CNN and Francesca Happé Adult Autism Is A Bouquet of Pretty Pink Flowers

Facing Autism in New Brunswick: IDEA Disorder, Intellectual Disability-Epilepsy-Autism Disorder, On World Autism Awareness Day

Conor  a year ago at the local ICU where he stayed for 6 days while the ICU professionals worked to save his life and return him to us in good health after a serious adverse reaction to his seizure medications.  Other parents of children with severe autism disorders and intellectual disabilities should be . . . → Read More: Facing Autism in New Brunswick: IDEA Disorder, Intellectual Disability-Epilepsy-Autism Disorder, On World Autism Awareness Day

Facing Autism in New Brunswick: Stanford Study Provides False Hope For Many Parents, Misrepresents Autism Disorders By Excluding Subjects With Intellectual Disability

A Stanford study which excluded autistic subjects with intellectual disability is being used to spread the false notion that autism is not a disability … just a difference. This misrepresentation of autism disorders appears in the August 16, 2013 San Jose Mercury News (I added the underlining, HLD): “Autistic kids with math abilities show . . . → Read More: Facing Autism in New Brunswick: Stanford Study Provides False Hope For Many Parents, Misrepresents Autism Disorders By Excluding Subjects With Intellectual Disability

Facing Autism in New Brunswick: SFARI, Once Again, Continues Misrepresenting High Functioning Autism/Aspergers Only Research As "Autism" Research

SFARI blog article depiction of a resting “Autism” brain accompanying  review of study employing only Aspergers subjects as representing  “autism” for comparison with non autistic resting brains SFARI continues its agenda of misrepresenting high functioning autism/aspergers only studies as representing “autism”.  It has published, on its blog page, several study reviews employing only high . . . → Read More: Facing Autism in New Brunswick: SFARI, Once Again, Continues Misrepresenting High Functioning Autism/Aspergers Only Research As "Autism" Research

Facing Autism in New Brunswick: A Humble Father’s Simple Autism, Intellectual Disability and Epilepsy Research Questions

I have been trying to read, and understand, literature about autism disorders since my son was diagnosed with an autism disorder almost 16 years ago. (Many would undoubtedly suggest I have far to go in development of that understanding).  In the last few years I have begun to try and read and learn more . . . → Read More: Facing Autism in New Brunswick: A Humble Father’s Simple Autism, Intellectual Disability and Epilepsy Research Questions

Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research

The Simon Foundation Autism Research Initiative, SFARI, continues to represent studies involving only high functioning autistic participants to the public as “autism” studies.  In the Children with autism have trouble recalling memories article posted January 3, 2014 SFARI reports as an “autism” study a study which excluded as participants the 50% of those with . . . → Read More: Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research

Facing Autism in New Brunswick: Emily Willingham Uses SFARI Pulpit To Misrepresent Severe Autism Disorder And Intellectual Disability

Emily Willingham argues that persons like my son,  with severe autism disorder and intellectual disability,  should remain invisible with the focus on those with “pure” autism and no intellectual disability

SFARI has done Emily Willingham a favor, allowing her to use their site as a platform to further her efforts to render invisible . . . → Read More: Facing Autism in New Brunswick: Emily Willingham Uses SFARI Pulpit To Misrepresent Severe Autism Disorder And Intellectual Disability

Facing Autism in New Brunswick: Great Autism News: 15 Year Old Boy With Autism And Intellectual Disability Found Safe

As the father of a 17 year old young man with severe autism, intellectual disability and epileptic seizures I am very happy to read that 15 year old autistic boy Louis Martin was found safe in Montreal after being reported missing by his father (who also tweeted his son’s disappearance).   Wandering is a . . . → Read More: Facing Autism in New Brunswick: Great Autism News: 15 Year Old Boy With Autism And Intellectual Disability Found Safe

Facing Autism in New Brunswick: Severe Autism Disorders: Conor’s Autism Progress: Teeth Brushing and Tickle Shaves!

Conor Doherty sporting a big smile after a quick  tickle shave adventure with Dad this morning Many famous “autistics” were not diagnosed until they were adults and have turned their diagnoses into good career opportunities: John Elder Robison, Michelle Dawson, Ari Ne’eman and Mr. Ne’eman’s colleagues, the fellow corporate trustees of the Autistic “Self” . . . → Read More: Facing Autism in New Brunswick: Severe Autism Disorders: Conor’s Autism Progress: Teeth Brushing and Tickle Shaves!

Facing Autism in New Brunswick: Autism Speaks Enters Into "PURE" Autism Research PACT; Excludes Autism With Intellectual Disability

Autism Speaks has entered into a Research PACT to continue its focus on “pure autism”  (referred to in the PACT as core symptom autism),   while ignoring 50% of the autism spectrum, those with intellectual disability (WHO, September 2013):

“Working together, the PACT team is developing a platform of preclinical tests to evaluate and compare new . . . → Read More: Facing Autism in New Brunswick: Autism Speaks Enters Into "PURE" Autism Research PACT; Excludes Autism With Intellectual Disability

Facing Autism in New Brunswick: 50% Some WHO Autism Awareness: Autism and Intellectual Disability 50%

Questions and answers about autism spectrum disorders (ASD) Online Q&ASeptember 2013 Q: Do persons with autism always suffer from intellectual disability? A: The level of intellectual functioning is extremely variable in persons with ASD, ranging from profound impairment to superior non-verbal cognitive skills. It is estimated that around 50% of persons with ASD also . . . → Read More: Facing Autism in New Brunswick: 50% Some WHO Autism Awareness: Autism and Intellectual Disability 50%

Facing Autism in New Brunswick: #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX

“Dr. Lynn Waterhouse @autismideasfail 6 Sep http://bit.ly/17WbZVi   #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX”

The above Tweet by Dr. Lynn Waterhouse, author of Rethinking Autism: Variation and Complexity,  who also worked with Dr. Lorna Wing on the APA DSM-III-R diagnostic criteria for autism,  should be . . . → Read More: Facing Autism in New Brunswick: #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX

Facing Autism in New Brunswick: Children’s Hospital of Eastern Ontario (CHEO) Writes Off Child With Autism AND Global Developmental Delay (Intellectual Disability)

CHEO: No Teddy Bears & No Autism Program  for Severely Challenged Children 

The Children’s Hospital of Eastern Ontario has been added as a respondent in a human rights proceeding, and accused of discrimination, after it kicked an autistic child with global developmental delay, severe intellectual disability, out of an early intervention program.

In . . . → Read More: Facing Autism in New Brunswick: Children’s Hospital of Eastern Ontario (CHEO) Writes Off Child With Autism AND Global Developmental Delay (Intellectual Disability)

Facing Autism in New Brunswick: SFARI Highlights Serious Risk of Epilepsy for Young Children and Teens with Autism and Intellectual Disability

“Children with autism who are older than 13 years and have low intelligence are at the greatest risk of having epilepsy, says one of the largest epidemiological studies on the issue to date1. Children are typically diagnosed with epilepsy after having at least two seizures — uncontrolled surges of electrical activity in the brain. About 2 . . . → Read More: Facing Autism in New Brunswick: SFARI Highlights Serious Risk of Epilepsy for Young Children and Teens with Autism and Intellectual Disability