Associated Morbidity and Mortality
Health care utilization and costs are substantially higher for children and adolescents with ASDs compared with children without ASDs,89–91 and available data suggest that mortality is increased as well (standardized mortality ratio: 2.4–2.6).92,93 The increased mortality in ASDs is thought to be largely, but not completely, accounted for by the increased mortality associated with mental retardation and epilepsy. . . . → Read More: Facing Autism in New Brunswick: Time To Divide The Heterogeneous DSM-5 Autism Spectrum Disorder and Free the Invisible, Severely Autistic From Oppression
The Autism Action Network reports, in It started: DSM5 used to revoke autism diagnosis, that the revoking of autism diagnoses under the DSM5 regime and the resulting denial of services and educational placements for people with autism disorders has begun. Here in Canada the Childrens’ Hospital of Eastern Ontario, CHEO, has excluded from its autism early intervention program a child it described as having global developmental delay, the express exclusionary phrase used in the DSM5 Autism Spectrum Disorder diagnostic definition. Swedo, Lord and company were warned this would happen and stubbornly insisted that their vision (Read more…)
Questions and answers about autism spectrum disorders (ASD) Online Q&ASeptember 2013 Q: Do persons with autism always suffer from intellectual disability? A: The level of intellectual functioning is extremely variable in persons with ASD, ranging from profound impairment to superior non-verbal cognitive skills. It is estimated that around 50% of persons with ASD also suffer from an intellectual disability. The above information is taken from the World Health Organization website page providing Q and A about autism spectrum disorders. Some will always choose to believe that autism and intellectual disability are totally unrelated concepts. It is easier to do (Read more…) . . . → Read More: Facing Autism in New Brunswick: 50% Some WHO Autism Awareness: Autism and Intellectual Disability 50%
“Dr. Lynn Waterhouse @autismideasfail 6 Sep http://bit.ly/17WbZVi #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX”
The above Tweet by Dr. Lynn Waterhouse, author of Rethinking Autism: Variation and Complexity, who also worked with Dr. Lorna Wing on the APA DSM-III-R diagnostic criteria for autism, should be read by any existing DSM5 committee members charged with developing modifications to DSM-5 diagnostic criteria. The DSM-5 has doubled down on the failed approach of simplifying autism contrary to solid evidence and research. Dr Waterhouse’s (Read more…) . . . → Read More: Facing Autism in New Brunswick: #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX
In “The new definition of autism” CBC News provides detailed descriptions of autism as represented by the five pervasive developmental disorders in the DSM-IV and the Autism Spectrum Disorder in the now published DSM5. With one major exception the article is a good summary of autism disorders pre and post DSM5. On another positive note the article expressly references ABA/IEBI as the primary evidence based intervention for autism treatment. The major exception to this otherwise balanced, thorough article is the failure to mention, while describing conditions commonly associated with autism, the substantial numbers of persons with autism (Read more…)
The DSM5 has been released and is now beginning to impact the world of autism. Most discussion of the DSM5′s New Autism Spectrum Disorder has ignored the effect of the language of mandatory criterion A which will act to exclude from autism diagnosis those with severe intellectual disability. Most of the discussion has focused on the potential exclusionary impact on those who would meet DSM-IV Asperger’s criteria. That being said the DSM5 autism team leaders have assured the high functioning end of the DSM-IV autism spectrum that those currently diagnosed with Asperger’s or high functioning autism will not lose their (Read more…)
Left – Transforming Diagnosis Insel
Right – NIMH Is Not Abandoning the DSM Insel.
In Transforming Diagnosis NIMH Director Thomas Insel said that the DSM was invalid, based on an antiquated system of diagnosis and …. patients deserve better. Then he retreated, tried to hide and claimed that people were misrepresenting the Transforming Diagnosis article, that the NIMH was just talking about research not clinical practice. Last I checked Diagnosis is a key part of a medical clinical practice. If you are talking about participants or subjects you are talking about research. If you are talking about patients who deserve (Read more…) . . . → Read More: Facing Autism in New Brunswick: Dr. Tom Insel’s Shameful DSM Retreat
The pictures above were initially posted on this site on May 26, 2012, several months before Conor’s 1st known Grand Mal Seizure in November. As I posted then, external conditions were perfect and Conor was enjoying a favorite activity in a favorite location when he suddenly began hitting himself in the head. I don’t know what caused it, Conor lacks the communication skills to explain, but it was definitely internal. Together with many similar circumstances including sudden closing of his eyes and looking blankly into the distance I reported them to his pediatrician as possible seizure activities. The pediatrician did (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism and Seizures: Conor’s Second Grand Mal Seizure (That We Know Of)
Intellectual Disability remains the Elephant in the Autism Living Room;no one wants to admit it’s there or to talk about it It is politically incorrect in today’s autism world to acknowledge the existence of the invisible autistics, the one’s unlike Ari Ne’eman, John Elder Robison, Alex Plank and Michelle Dawson all of who whom have enjoyed great success and demonstrate considerable intelligence and most of whom have never met a television camera or gathering of journalists that offends them. Some of the extremely high functioning superstars of autism “self” advocacy have literally built careers telling the world (Read more…)
If past is prologue very little awareness of the harsher realities of autism symptoms will be generated on this WAAD, April 2, 2013. Next year, in 2014, and for years thereafter, the streamlined DSM5 autism will also eliminate many on the very high functioning and low functioning ends of the autism spectrum. It is unfortunate that in the DSM5 Autism Spectrum Disorder definition the American Psychiatric Association is revising the medical definition of autism spectrum disorder in ways that are expected to change its diagnostic characteristics. There is no good reason to wreck havoc on autism research and diagnosis . . . → Read More: Facing Autism Symptoms in New Brunswick: World Autism Awareness Day 2014
Education and Early Childhood Development Minister Jody Carr EECD/NBACL Event Focus on Inclusion: Walking in our shoes. Minister Carr spoke for 40 minutes, repeating the word inclusion 30 – 40 times but never mentioning evidence based accommodation of individual needs and challenges
Premier David Alward’s government has transferred control over New Brunswick education policies and practices to the NB Association for Community Living. The NBACL is, beyond doubt, an organization of people with good intentions committed to improving the lives of those with intellectual challenges. I wish , as the father of a son with severe autism disorder and profound (Read more…) . . . → Read More: Facing Autism in New Brunswick: New Brunswick’s Extreme Inclusion Fantasy Harms Some Children With Severe Autism Challenges
If you believe IACC Neurodiversity advocates present and past, Ari Ne’eman and Matthew Carey, autism is not something that should be cured. You won’t see much about the harsher aspects of life with autism disorders if you read their writings. In their view autism is nothing more than a different way of thinking, not a … disorder … or group of challenging symptoms for which cures are needed.
No, the enlightened Neurodiversity thinkers who are selected to represent the mythical “autism community” at the IACC see autism in the image of the members of the ASAN Board of Directors, . . . → Read More: Facing Autism Symptoms in New Brunswick: The Harsh Reality End of the Autism Spectrum
TPGA guru Shannon Des Roches Rosa (SDDR) is aghast and angry because Slate.com has dared publish “Is the Neurodiversity (ND) Movement Misrepresenting Autism?“, a gentle critique by autism parent Amy S.F. Lutz, of the harmful, irrational Neurodiversity ideology embraced by the leaders of the ironically named “Thinking” Person’s Guide to Autism. Self labelled as a guide for “Thinking” Persons the TPGA is harshly critical of anyone, especially autism parents, who disagree with them; anyone who portrays autism as a disorder or as a group of disorders, deficits or symptoms. In the Neurodiversity world of the . . . → Read More: Facing Autism Symptoms in New Brunswick: TPGA Aghast and Angry: Slate Dares Print Autism Parent Critique of Neurodiversity Ideology
Although Frank Farley makes his comments about the DSM5 and the state of academic psychology in a CBS interview in an understated, diplomatic manner the comments should give reason to pause for anyone interested in autism and other psychology issues given his former status as American Psychological Association president: “Frank Farley, a Temple University psychologist and former president of the American Psychological Association, agreed that a significant number of professionals and scholars were skeptical about the science that went into the DSM-5. Looking to 2013, an international movement has arisen toward re-conceptualizing diagnosis from the ground up, and I . . . → Read More: Facing Autism Symptoms in New Brunswick: Professional and Scholarly Concern About the Science Behind the DSM5
Autism Specifics Press Release, April 1, 2020:
Autism Specifics President “Aristotle” Newman and ASAN President Dr. Jerry Dobson will be jointly reflecting today on important events in the autism world during the past year.
1. First anniversary of DSM5.13 This year marked the first year since the DSM5 that a revised edition of the DSM5 has endured an entire year without being modified. Changes introduced by the classic, original DSM5 were revolutionary, particularly with the steps taken to exclude the intellectually disabled from the autism spectrum, but revisions were introduced periodically to deal with oversights in the classic . . . → Read More: Facing Autism Disorders in New Brunswick: Autism Awareness Day April 1, 2020
Autism diagnoses have been increasing at incredible rates. Within the past two decades estimates of the numbers of persons diagnosed with autism has increased from 1 in 500 to 1 in 250 to 1 in 110 to 1 in 88. Those are startling numbers to this humble, unsophisticated mind. Yet to many in the autism research and Neurodiversity communities these numbers do not reflect a real increase. These smarter than the average bear types are sure that these incredible numbers are simply due to diagnostic definition changes, increased awareness and the existence of readily available of free treatments and services . . . → Read More: Facing Autism Disorders in New Brunswick: Are All Epidemiological Autism Studies Flawed?
The American Psychiatric Association’s passage of the DSM5 and its New Autism Spectrum Disorder was passed Saturday December 1, 2012 without any of the mainstream media taking noting of the real targets, the real victims of the new Autism de… . . . → Read More: Facing Autism Disorders in New Brunswick: Congratulations "Dr." Catherine Lord! APA’s DSM5 Autism Targeted Exclusion of Intellectually Disabled Passed December 1, 2012.
If you believe the DSM5 Neurodevelopmental committee responsible for expressly removing those with Intellectual Disability from the new, oversimplified Autism Spectrum Disorder when they claim that exclusion is based on current science you may wan… . . . → Read More: Facing Autism Disorders in New Brunswick: DSM5 Autism Exclusion of ID? Study Finds Single Gene Mutation Known To Cause Intellectual Disability Increases Risk of Autism Disorders
“If you’ve met one person with autism – you’ve met one person with autism.” Stephen Shore The succinct and famous quote by Stephen Shore about the variation and complexity of autism disorders is cited often and just as often ig… . . . → Read More: Facing Autism Disorders in New Brunswick: Autism 2013: Insel’s Autisms or the Oversimplified DSM5 Autism Spectrum Disorder?
Four years ago, in Autism’s Outcasts, I wrote about the exclusion from public consciousness, and from autism research, of those with autism and intellectual disabilities. I am re-posting the research portion of Autism’s Outcasts below. The comment overall talks about the media tendency, as demonstrated at that time by CBC and CNN, to exclude the harsher realities of severe autism, including those with associated with intellectual disability, from their generally feel good portrayals of autism disorders. At the time I was unaware that the DSM5 autism “experts” would soon thereafter take steps to officially cast the intellectually . . . → Read More: Facing Autism Disorders in New Brunswick: Autism Research Bias, Autism’s Outcasts And The DSM5 Autism Do-Over: Shame on the APA
In Autism diagnosis change questioned by York University study Toronto Star Science & Technology Reporter Kate Allen interviews Dr. Adrienne Perry and York University undergraduate student, Azin Taheri, about a study designed by Taheri, with assistance from Dr. Perry, which had been intended to look at how the new DSM-5 criteria applied to kids already diagnosed with Autistic Disorder and PDD-NOS. No subjects with Asperger’s Disorder were included in the study.
“The York study looked at case histories of 131 children aged 2 to 12. All had either autism or pervasive developmental disorder-not otherwise specified (PDD-NOS), two of the . . . → Read More: Facing Autism Disorders in New Brunswick: York University Study Joins Ranks Of Those Raising Questions About The DSM5 Autism Do-Over
Conor Shows Off His New Shave and Haircut Nothing wrong with bribery if it helps us get Conor to sit still for a shave and haircut! That’s what happened this long weekend when I bribed Conor to accept a shave and haircut by indicating first shave and haircut then back to school, the school he loves so much. A school where he receives what the extreme, everybody in the mainstream classroom, ill informed inclusion ideologues deride as a segregated school. Conor accepted the shave and haircut. I handled the shave. Mom handled the haircut. Conor loves his so called . . . → Read More: Facing Autism Disorders in New Brunswick: Bribery! First Shave & Haircut for Conor THEN Back to So Called "Segregated" School
Emily Singer has published an article at SFARI, Proposed guidelines won’t miss autism cases, study says, which appears to suggest that persons who would meet DSM-IV PDD-NOS and Asperger’s will “only” be reduced by approximately 10% under DSM5 criteria. The focus, as always, is on the HF end of the spectrum with no mention made of the intellectually disabled who will be excluded under the wording of mandatory criterion A of the DSM5. ”We didn’t see any evidence that there would be dramatically lower diagnosis of people with Asperger’s or PDD-NOS,” says Lord.”
Catherine Lord has
. . . → Read More: Facing Autism Disorders in New Brunswick: More Confirmation of Targeted Exclusion of Intellectually Disabled from DSM5 Autism Spectrum Disorder: But NO ONE CARES
Many children with intellectual disability and autism will be specifically targeted for exclusion under the DSM-5 new Autism Spectrum Disorder. The express wording of mandatory criterion A of the DSM-5 ASD criteria makes this clear: “Autism Spectrum Disorder Must meet criteria A, B, C, and D: A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays“ Very, very few people, apart from myself, have expressed any concern over the express and specific exclusion of intellectually disabled from future autism disorder diagnoses. No one has seriously discussed the rationale . . . → Read More: Facing Autism in New Brunswick: DSM5 Autism Change Threatens Funding for Intellectually Disabled Who Meet DSM-IV Autism Criteria