Facing Autism in New Brunswick: Conor After Another Seizure

.  Conor has been on  a good run for the previous 7-10 days and today was pretty much the same until 6:15 this evening when we heard a loud thump uupstairs.  His mom ran upstairs and screamed for help when she saw him convulsing on the floor with thick fluids oozing out of his mouth. ...

Facing Autism in New Brunswick: Conor After Another Seizure

.  Conor has been on  a good run for the previous 7-10 days and today was pretty much the same until 6:15 this evening when we heard a loud thump uupstairs.  His mom ran upstairs and screamed for help when she saw him convulsing on the floor with thick fluids oozing out of his mouth. ...

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He ...

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He ...

Facing Autism in New Brunswick: Conor Enjoyed Nature With An Osprey Day In His "Back Yard" The North Riverfront Trail, Fredericton

Conor embraced his right to enjoy nature a couple of times today (so far) with fun walking and running in his “back yard” Fredericton’s North Riverfront Trail. He also took time to throw some rocks into the St. John River along the way and check out the neighbors, the Osprey family, as they prepared their ...

Facing Autism in New Brunswick: Autism and Epilepsy from Facebook to Reality: Conor Experiences Another Seizure

Earlier today I posted to my Facebook page and to the Autism Society New Brunswick FB page the link to Tonic-clonic seizures at Epilepsy.com.  I included the note that it was important for persons with autism to be aware of such seizures because of the high number of person who suffer from epileptic seizures including ...

Facing Autism in New Brunswick: Severe Autism With Intellectual Disability And Epilepsy Can Be Tough But It’s Still a Wonderful World

My Son Conor Wore The Blue on World Autism Awareness Day I understand some of the criticisms of the day and of thinking that wearing a color in itself creates autism awareness but as long as people  raise real autism awareness of the challenges of autism disorders and  the related  conditions from which so many ...

Facing Autism in New Brunswick: Our Happy Conor is Back! And Dad Is Happy Too!

The top photo above was taken a year and a half ago,  shortly after Conor recoved from a very serious adverse reaction to his seizure med at the time, Lamtrogine, which resulted in two weeks in the hospital including an emergency room visit and 6 days in the ICU where the excellent medical team there, ...

Facing Autism in New Brunswick: Conor’s Back Yard 2014 – Fredericton’s North Riverfront Trail

Facing Autism in New Brunswick: Joy of Conor 2014

I will not pretend, I will never pretend, that autism is just a different way of thinking.  Heather and I love our son too much to lie to the world about the nature of his autism realities, his severe autism, intellectual disability and epileptic seizures.  Like many parents of autistic children I believe it is ...

Facing Autism in New Brunswick: I Am Hoping for NDP Voices in the NB Legislature to Help Families Advocate for An Adult Autism Care Facility

The picture above is from Conor’s 2nd Birthday on February 2,  1998.  The next day we received his autism disorder diagnosis, described initially as Pervasive Developmental Disorder Not Otherwise Specified,  six months after various tests and six months after requesting medical attention because we did not understand his lack of development and we were concerned.  ...

Facing Autism in New Brunswick: Autism Disorders and Transition To and Through School: A Small Suggestion

Conor visiting and preparing for his transition from middle school to high school by  visiting the grounds of the school and seeing the Leo Hayes High School building.  I have commented on transition planning in the school system before and I don’t know if what we did with our severely autistic, profoundly developmentally delayed son ...

Facing Autism in New Brunswick: Inclusion Done Right: Conor at Leo Hayes High School Resource Centre

Pictures above and below: Inclusion done right at Leo Hayes High School Resource Centre Pictures courtesy of Steve at the LHHS Resource Centre Inclusion done wrong is inclusion as advocated by Gordon Porter of the CACL and NBACL, and the current Conservative government which has very close ties to Mr Porter and the NBACL According ...

Facing Autism in New Brunswick: Conor’s 3rd Tonic Clonic (Grand Mal) Seizure

Two and a half hours ago Conor suffered his 3rd Tonic Clonic or Grand Mal seizure.  (He also suffered an episode of rhabdomyolisis, a serious adverse reaction to his previous seizure medication).  On the previous 2 seizures Conor was in a room by himself when they started, this time he was with me in the ...

Facing Autism in New Brunswick: Conor Has A Blast At The Leo Hayes HS Resource Centre Fun Run!

Conor had a lot of fun at the Leo Hayes HS Resource Centre Fun Run yesterday. I loved these pictures taken by Leo Hayes Resource Teacher Tanya McBride. Ms McBride was kind enough to forward them to us. Made my day!

Facing Autism in New Brunswick: Conor One Year Later!

Above: Conor this morning before Mom drove him to school  at the Leo Hayes High School Resource Centre.  Mom and Dad are very happy to have our Conor with us healthy and happy.   Below: One year ago Conor was in the Intensive Care Unit of the Chalmer’s Hospital for 6 days where he was ...

Facing Autism in New Brunswick: United Church Observer: Through the Cracks, For Adults With Developmental Disabilities Gaps Remain

The United Church Observer article, Through the cracks, by  Kevin Spurgaitis,  tackles issues relating to the lack of available care for adults with severe developmental disabilities including autism disorders.  Simply by addressing, and shining a spotlight on the lack of places that can provide permanent residential care to those with autism disorders they have helped to ...

Facing Autism in New Brunswick: 16 Years After Conor’s Autism Diagnosis: Lots of Conor Joy But No Progress in Autism Research

Yesterday was Conor’s 18th birthday. Today is exactly 16 years after his autism diagnosis, received the day after his second birthday and after several months of testing and observation. Conor, now a young man, is till the happy boy that brings joy to his Mom and Dad, along with many serious challenges, challenges that restrict ...

Facing Autism in New Brunswick: Proud of Our Conor

Conor looking cool, calm and composed in his grandparents’ yard in  Nova Scotia’s Annapolis Valley in November. This morning he showed  just  as much calm while enduring an early morning blood sample needle. We were, once again, very proud of our Conor today.  Not for demonstrating some special “autism” skill, not for anything that would be featured in ...

Facing Autism in New Brunswick: See You At 6

Conor went to bed at his usual time tonight.  After about an hour he got up to use the washroom.  As he was heading back to his room he said in his own manner of speech “See you at 6” which is the exact time he gets up every morning.  He then  puts CBC NB ...

Facing Autism in New Brunswick: Life in Conor’s "Back Yard", Fredericton’s North Riverfront Trail, in 2013

2013 was a challenging year for Conor and Dad health wise. I spent a week in acute care with some respiratory issues and Conor spent 2 weeks in hospital, including a six day stay in the ICU recovering from a life threatening adverse reaction to his seizure medication. Overall though life was good in 2013, ...

Facing Autism in New Brunswick: Severe Autism Disorders: Conor’s Autism Progress: Teeth Brushing and Tickle Shaves!

Conor Doherty sporting a big smile after a quick  tickle shave adventure with Dad this morning Many famous “autistics” were not diagnosed until they were adults and have turned their diagnoses into good career opportunities: John Elder Robison, Michelle Dawson, Ari Ne’eman and Mr. Ne’eman’s colleagues, the fellow corporate trustees of the Autistic “Self” Advocacy Network. ...

Facing Autism in New Brunswick: Excellent! Chalmers ICU Team Reaches Its Funding Goal to Purchase New Patient Monitoring Equipment!

The Chalmers Foundation has officially announced that it has met its funding goal and will soon be purchasing the patient monitoring system that is instrumental in helping the Chalmers Hospital Intensive Care Unit save many lives … including my son Conor’s for which his Mom and Dad will always be grateful: “The Chalmers Foundation shared a link. September ...

Facing Autism in New Brunswick: Conor Countdown Continues In Support of FLEXIBLE, EVIDENCE BASED Inclusion

The Conor Countdown continues, as Conor gets up each day at 6 am and changes the number reflecting the number of days until school resumes. My son Conor, and his autism disorder disability,  have been well accommodated in schools here in Fredericton, New Brunswick, Canada.  He has benefited both from the assistance of education aides ...

Facing Autism in New Brunswick: Run Jump Fly Boy Is Back – Thank You Again DECH ICU!

A few months ago, Conor was lying unconscious  in a bed at the Intensive Care Unit of the Chalmers’ Hospital (the DECH) with tubes running out of his body and hooked up to 10+ year old monitoring equipment.  Notwithstanding the age of the monitoring equipment the fantastic DECH ICU team brought Conor back to us ...