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THE CAREGIVERS' LIVING ROOM A Blog by Donna Thomson: BREAKING THE BOUNDARIES OF COMPLEX CARE FOR CHILDREN

Breaking the Boundaries of Complex Care for ChildrenComplex care is a real interest of mine. We gave complex care at home to our son for 23 years and now his care is delivered by one to one nurses at a nearby care home. My Mom’s care is becoming increa… . . . → Read More: THE CAREGIVERS’ LIVING ROOM A Blog by Donna Thomson: BREAKING THE BOUNDARIES OF COMPLEX CARE FOR CHILDREN

THE CAREGIVERS' LIVING ROOM A Blog by Donna Thomson: BREAKING THE BOUNDARIES OF COMPLEX CARE FOR CHILDREN

Breaking the Boundaries of Complex Care for Children

Complex care is a real interest of mine. We gave complex care at home to our son for 23 years and now his care is delivered by one to one nurses at a nearby care home. My Mom’s care is becoming increasingly complex – she is 94 and progressively more frail. Complex care is described this way by one Ontario hospital group: Complex Care is a part of the health services continuum designed to provide medical management, skilled nursing and a range of interdisciplinary, diagnostic, therapeutic and technological services to achieve patient identified goals and optimize the quality of life of individuals who have a chronic complex condition.
The Complex Care Initiative at Sick Kids began in 2006, by the late pediatrician Dr. Norman Saunders. For ten years it has opened its doors to children with multiple and complex health challenges, often to those who could not find adequate care anywhere else.
For Ian Brown’s 19-year-old son, Walker who was diagnosed with a rare genetic disorder at birth, the care provided more than just resources to manage his health. It was the first time his son was not just treated as a patient, or problem to be fixed, but a human being.
Interviewed:
Dr. Denis Daneman, paediatrician-in-chief at the Hospital for Sick Children in Toronto, and expert advisor with EvidenceNetwork.ca, explains what the initiative tries to achieve.
Ian Brown is a Canadian journalist and author, winner of several national magazine and newspaper awards.
Interview by Dane Wanniarachige, journalist intern at EvidenceNetwork.ca.

. . . → Read More: THE CAREGIVERS' LIVING ROOM A Blog by Donna Thomson: BREAKING THE BOUNDARIES OF COMPLEX CARE FOR CHILDREN

THE CAREGIVERS' LIVING ROOM A Blog by Donna Thomson: Setting Roles, Boundaries and Limits in Mothering a Complex Child

One day a few months ago, fellow disability Mom and writer Jennifer Johannesen sat down with me for a chat.  (I highly recommend Jennifer’s book and her blog– they are at the top of my favourites list.)  In a previously published portion of our chat, I introduced Nicholas and our family life.

Here, I . . . → Read More: THE CAREGIVERS’ LIVING ROOM A Blog by Donna Thomson: Setting Roles, Boundaries and Limits in Mothering a Complex Child

THE CAREGIVERS' LIVING ROOM A Blog by Donna Thomson: Regrets and Triumphs in Mothering a Complex Son: A Video Conversation

Recently, I had the privilege of sitting down for a chat with my friend and colleague in disability activism, Jennifer Johannesen.  Jennifer is a blogger and the author of “No Ordinary Boy: The Life and Death of Owen Turney”, a riveting memoir of life with her son Owen whose medical challenges sadly, eventually claimed his . . . → Read More: THE CAREGIVERS’ LIVING ROOM A Blog by Donna Thomson: Regrets and Triumphs in Mothering a Complex Son: A Video Conversation

THE CAREGIVERS' LIVING ROOM - A Blog by Donna Thomson: Some Doctors are Better Than Others!

Some doctors are better than others – ask anyone with an ageing parent or a complex child.  Do you know any doctor who still makes house calls?

I DO and he’s our doctor!  Dr. Robert Eaton is my personal hero.  He is a family doctor who is famous throughout our community for ‘taking the dregs’, . . . → Read More: THE CAREGIVERS’ LIVING ROOM – A Blog by Donna Thomson: Some Doctors are Better Than Others!