Huge gaps remain n New Brunswick’s adult autism residential care and treatment system. An autism specific residential care and treatment centre and autism specific group home system is needed to bridge those gaps.
HON. CATHY ROGERS Minister of Social Development HON. VICTOR BOUDREAU Minister of Health HON. BILL FRASER MLA Miramichi HON. STEPHEN HORSMAN MLA Fredericton North As an autism advocate for over 15 years in New Brunswick (and father of a 19 year old severely autistic son) I was saddened, though not at all surprised, to read the report by Samantha Magee of the Miramichi Leader of (Read more…) . . . → Read More: Facing Autism in New Brunswick: 19 Year Old Non Verbal Autistic Man Evicted From Miramichi Special Care Home Because He Is An Adult
Meeting of Senior Department of Education Officials With Gordon Porter And Other Advocates of Extreme Everyone In the Mainstream Classroom Inclusion June 20, 21, 2012Information from CANADALAND web site.
L: Yude M. Henteleff, C.M., Q.C., L.L.D. (Hon.) R: Harold L. Doherty at the Atlantic Human Rights Centre Inclusion Conference Crowne Plaza Fredericton-Lord Beaverbrook, June 14, 15, 2012 Mr. Henteleff presented, a paper advocating for a range of learning placement optionsin order to ensure meaningful inclusion: MEANINGFUL ACCESS, INCLUDING THE PROVISION OF A WIDE RANGE OF PLACEMENTS, AS AN INTEGRAL PART (Read more…) . . . → Read More: Facing Autism in New Brunswick: Larry’s Gulch Inclusive Education Review June 21, 22, 2012
Several years ago it appeared that a new paradigm for understanding autism disorders was emerging, one which would allow greater understanding of the cause, or causes, of autism. Historically, as was noted by Teresa Binstock, researchers, and those who fund autism research, took the view that autism has “gotta be genetic”. By 2010 there was hope that finally the autism researchers’ obsessive belief that autism is entirely genetic was giving way to the GxE (Gene Environment Interaction) model. With the CATS study it appeared that GxE was actually being reflected in autism studies. Since the CATS study (Read more…)
Monday, February 9, 2015 is the first International Epilepsy Day, a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) scheduled to occur annually hereafter on the second Monday in February to promote epilepsy awareness around the world. Epileptic seizures are much more common among persons with an autism spectrum disorder than among the general population and parents of children with a newly diagnosed autism disorder should discuss the possibility and care implications of autism with their medical advisers. The autism and epilepsy connection is discussed on (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism Disorders and the 1st International Epilepsy Day, February 9, 2015
Canada, despite a private members motion championed by the late Fredericton MP Andy Scott and Nova Scotia MP Peter Stoffer which called for one, does not have a REAL National Autism Strategy. The failure to enact a REAL National Autism Strategy means that in some provinces very few autistic children receive intensive early ABA intervention. The private member’s bill, Bill C-304, introduced by former PEI MP Shawn Murphy, set out below was crushed by the Harper Conservatives and Quebecois MPs. Had Bill C-304 passed 9 years ago many, many more autistic Canadian children would have received early ABA (Read more…)
During the 2010 New Brunswick election Dr. McDonnell, as noted above, was interviewed by CBC on the subject of adult autism care. The interview and analysis posted on the site are no longer available online but he stated at that time (bold highlighting added by me):
Paul McDonnell, September, 2010
“Our greatest need at present is to develop services for adolescents and adults. What is needed is a range of residential and non-residential services and these services need to be staffed with behaviourally trained supervisors and therapists. In the past we have had the sad spectacle of individuals with (Read more…) . . . → Read More: Facing Autism in New Brunswick: Is 2015 The Year New Brunswick Finally Addresses Serious NB Adult Autism Residential Care and Treatment Needs?
The Autism Society Canada web site was down briefly and I had hoped, notwithstanding past experience, that the ASC would have started presenting an accurate picture of autism disorders to the Canadian public and families with autism disorders. My hopes, faint as they might have been, were dashed again. ASC, on its “new” web site face, once again misrepresents autism disorders by hiding some harsher facts, in particular the fact that as much as 50% (World Health Organization) of persons with autism disorders also have an intellectual disability:
“Q: Do persons with autism always suffer from intellectual (Read more…)
Many with autism disorders also suffer from epileptic seizures and should be aware of the risk of SUDEP, Sudden Unexpected Death in Epilepsy. The following is a News Release about SUDEP the global conversation a joint effort of several epilepsy and SUDEP awareness ogranizations in the US, Canada and Australia:Families, researchers, clinicians and organisations unite to promote a global conversation on sudden death in epilepsy A global collaboration of charities, researchers and families has created a unique online knowledge resource on sudden deaths in epilepsy. This new, web-based ’Global Conversation’ combats the myth that seizures do not kill. Sudden (Read more…)
Dear Hon. Premier Gallant, Deputy Premier Horsman,Speaker Collins, Ministers, Party Leaders and Government Advisers: Re New Brunswick’s Lack of Adult Autism Care: I am sure that you are all grappling with important issues in these weeks following a provincial election. Many issues have generated intense discussion and serious attention from all of our public leaders. The issue of adult autism care however was not one of those issues. Neither the current governing Liberal Party nor the previously governing Conservative party mentioned autism in their platforms. The Green Party did propose regional autism group homes which would certainly help those (Read more…) . . . → Read More: Facing Autism in New Brunswick: Dear Elected Representatives: New Brunswick Needs Adult Autism Residential Care and Treatment
I will not pretend, I will never pretend, that autism is just a different way of thinking. Heather and I love our son too much to lie to the world about the nature of his autism realities, his severe autism, intellectual disability and epileptic seizures. Like many parents of autistic children I believe it is in his best interest that the world knows the realities of the complex disorder he endures and that often causes him to suffer and puts his life at risk. I can face his autism realistically while appreciating every ounce of the joy he himself brings (Read more…)
The DSM5 is certainly open to criticism; particularly in its combining of the pervasive developmental disorders into one Autism Spectrum Disorder ignoring the very large numbers of persons with DSM-IV Autistic Disorder who also suffer from Intellectual Disability. One point which did make sense in the Autism Spectrum Disorder diagnostic criteria though is the one that is routinely ignored by those who glorify autism disorders … Criterion D (underlining added): Diagnostic Criteria for 299.00 Autism Spectrum Disorder D.Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning. The subscribers to the irrational view that (Read more…) . . . → Read More: Facing Autism in New Brunswick: DSM5 ASD Criterion D: No Clinically Signifcant Impairment in Current Functioning = No Autism
The Seinfeld-Descartes Autism Diagnostic Tool: I Think I Am Autistic Therefore I Am Autistic
Many, especially many with very, very high functioning autism diagnoses have embraced Jerry Seinfeld’s new test for autism “conditions” one that the great comic borrowed from philosopher Rene Descartes: ”I think I am autistic, therefore I am autistic“. With the Seinfeld-Descartes diagnostic tool it is no longer necessary for those who want to join the truly amazing autism club to obtain one of those pesky medical diagnoses. Nor will it be necessary to demonstrate the presence of that nasty Criterion D in the DSM5 (Read more…)
(Grainy) Composite Photo 0f Jerry Seinfeld by Harold L Doherty, Moncton Coliseum, February 2012, 2 Years Before His Revelation That He “Might” Be “On “The Autism Spectrum” Picture by Harold L Doherty of My Son Conor Doherty On His 2nd Birthday, The Day Before His Autism Disorder Diagnosis Was Received After Six Months Of Tests And Pediatric Observation Jerry Seinfeld has revealed, at age 60, that he thinks he might be “on the autism spectrum”. He may be right, I don’t know and won’t know unless he seeks a professional assessment and makes the result of that assessment known (Read more…)
I chose the name of my email account “AutismRealityNB@gmail.com” because, from my perspective, the harsh realities of autism disorders are usually ignored or worse, intentionally misrepresented, by the mainstream media, autism awareness organizations, some high functioning autism “self”advocates and even some parents and autism professionals. An online friend of mine who shares similar perspectives, Roger Kulp, shared an article on my Facebook timeline yesterday which surprised me because it was a commentary published in the New Jersey Courier-Post which presented a realistic view of some of the harsher realities faced by some with autism (Read more…)
A much higher percentage of people with autism spectrum disorders suffer from epileptic seizures than among persons in the general population. At the severe end of the autism “spectrum” it has been estimated that as many as 39% also suffer from seizures. My severely autistic, intellectually challenged son Conor suffers from seizures including tonic clonic known as Gran(d) Mal seizures and almost lost his life last year to an adverse reaction to his seizure med at that time. Among persons with epilepsy there are many risks surrounding loss of consciousness and breathing during seizures. Approximately 1% (Read more…)
The PC Plan for New Brunswick does not include any provisions that will help severely autistic students or adults, the same people who have been harmed by PC policies during the Alward-Porter-Carr administration. In fact the the Platform brags about the Gordon Porter-Jody Carr harmful, discriminatory, inclusion remake and is silent on the topic of adult autism care.
Gordon Porter was a member of the Alward government transition team. He has relentlessly pushed his own philosophical, non evidence based inclusion philosophy on all NB students since the 1970′s he has collected many ribbons around the world for (Read more…)
New Brunswick election 2014 is underway with the NDP, Liberal, Green and PANB parties going all out to replace the PC party. Party signs are proliferating around the city of Fredericton. The Liberal Party kicked off big time in Fredericton with special guest federal Liberal leader Justin Trudeau and provincial leader Brian Gallant. It was a lively, well organized event and the optimism was clear. I enjoyed my brief chat with the charming greeting ladies pictured outside the Fredericton Ex building. In a general sense I enjoy elections, I firmly believe, despite the many legitimate bases for criticism that (Read more…)
Photo of my son Conor from a few years ago submitted to the Aquinian for an article by then Aquinian journalism student Karissa Donkin. No progress in residential care and treatment for severely autistic adults in New Brunswick has been made since that article or since Conor’s autism diagnosis 16 years ago at age 2
June 18, 2014
Dear Mr Alward, Mr Cardy, Mr Coon and Mr Gallant:
A provincial election will soon be held and one of you will be premier, once again if it is Mr Alward, for the first time if it is Mr Cardy, Mr Coon (Read more…) . . . → Read More: Facing Autism in New Brunswick: Dear Mr Alward, Cardy, Coon, Gallant: New Brunswick Still Needs A Permanent Residential Care and Treatment Centre For Severely Autistic Adults
We were cleaning books and papers out of the “China Cabinet” in our kitchen today. We had never stored China there only photos, albums and papers. Like other China Cabinets though there were glass doors on the front through which you could view the China. Over time Conor had, on different occasions, while suffering meltdowns, put his hands though the glass windows. I thought I had gotten all the glass out on each occasion but today after moving a group of albums I found some shards of glass, shards of severe autism realities. Such events are not talked about (Read more…)
I didn’t see this autism “controversy” brewing. The authors of an article published in the Sage Autism journal have challenged the credibility of the US CDC autism prevalence figures. The full article is on line and free for viewing (PDF also available free) at: Should we believe the Centers for Disease Control and Prevention’s autism spectrum disorder prevalence estimates? David Mandell Luc Lecavalier “In March 2014, the Centers for Disease Control and Prevention (CDC) released their most recent estimate of the prevalence of autism spectrum disorder (ASD) among children aged 8 years (CDC, 2014). Their startling finding was that 1 (Read more…) . . . → Read More: Facing Autism in New Brunswick: US CDC Autism Prevalence Estimates Challenged
NB Premier David Alward whose government has Produced a New Autism Intervention Policy with No Provision for Funding Training of Autism Support Workers treating New Brunswick’s autistic pre-schoolers. The next time you sit in a dentist’s chair will you have to wonder whether the dental assistant or even the dentist is properly trained? Will you have to ask whether your child’s teacher has a university education? The answer to both of these questions is obviously no. Medical and education workers generally are required to be properly trained. Nor do we want untrained “mechanics” servicing our cars. In New Brunswick (Read more…)
Pictures above and below: Inclusion done right at Leo Hayes High School Resource Centre Pictures courtesy of Steve at the LHHS Resource Centre
Inclusion done wrong is inclusion as advocated by Gordon Porter of the CACL and NBACL, and the current Conservative government which has very close ties to Mr Porter and the NBACL According to them inclusion means that ALL children, including those with severe disabilities like my son Conor MUST be educated in the regular classroom. This is a philosophical belief held by Gordon Porter and those who follow, in a cult like fashion, his teachings. (Read more…)
I could write about how Doug Ford’s comments on a group home showed he was ignorant, selfish, and a shameless liar. I might as well write water is wet. Doug’s comments were despicable and the worst kind of populist fear mongering. In other words, exactly what you would expect to hear from him. I don’t […]
CNN which loves to portray high functioning autism and Aspergers as autism has done it again with a feature called “Autism Is Growing Up” which … of course … features only adult persons with High Functioning Autism and Aspergers. In fact CNN and its accomplice Francesca Happé present 7 full stories of persons with high functioning autism and Aspergers. In addition an 8th adult with Aspergers, Canadian Zoey Roberts, is featured on the opening page of this creative portrayal of Aspergers as autism telling people that “autism is not a tragedy” which of course it isn’t if you happen to exist on (Read more…)
Dear Toronto City Councillor Doug Ford, as the father of a son with severe autism disorder, my son Conor pictured above, I want to reassure you that you needn’t be so afraid of autistic kids. If you actually get to know any you may find they can even bring a smile to your day.
Doug Ford has stood by his comments that a group home for children and youth with autism is ruining his community. While his statement, as I said yesterday, is contemptible, and makes no sense, maybe inside that big, thug like appearance is just a scared little (Read more…)