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Mind Bending Politics: Ontario’s New Autism Policy Not Going Over Well With Parents

(Ontario’s new autism policy lipstick on a pig, rather than implementing needed changes) With the Ontario Government announcing major funding initiatives over the past few months, it looks like autism services are not high on its priority list. Back in March, the Ontario government announced that it was going to do away with much needed […] . . . → Read More: Mind Bending Politics: Ontario’s New Autism Policy Not Going Over Well With Parents

Mind Bending Politics: Ontario Premier Kathleen Wynne on Autism, Teachers Unions, and More

(Ontario Premier Kathleen Wynne Still Talking Down To Parents Not At Parents)   Yesterday Ontario Premier Kathleen Wynne appeared as a co-host on CFRB 1010’s drive time talk show, where she discussed a wide range of topics including the autism protests, ABA and IBI therapy and the fact that she has been listening to parents. […] . . . → Read More: Mind Bending Politics: Ontario Premier Kathleen Wynne on Autism, Teachers Unions, and More

Mind Bending Politics: Ontario’s Education System in Crisis: Proactive Change Needed in Youth and Education Services

As a parent with a non-verbal autistic kid, one of my worst nightmares is to have to deal with a teacher that isn’t qualified to ensure the care of my child. We’ve been pretty lucky. The teachers and staff taking care of my son in the school system are extremely caring, professional and have been […] . . . → Read More: Mind Bending Politics: Ontario’s Education System in Crisis: Proactive Change Needed in Youth and Education Services

Mind Bending Politics: Behaviour Experts Call Wynne’s Autism Policy Destructive

Toronto, April 20, 2016 – The Ministry of Children and Youth Services has declared that as of May 1, Ontario will no longer provide Intensive Behavioural Intervention (IBI) to children of five years and older. A group of nine Board Certified Behavior Analysts™ (BCBAs), who are practitioners and advocates for children with Autism Spectrum Disorder […] . . . → Read More: Mind Bending Politics: Behaviour Experts Call Wynne’s Autism Policy Destructive

Mind Bending Politics: Ontario Agencies Supporting Individuals With Special Needs Weighs In On Ontario’s New Autism Policy

  The Ontario Agencies Supporting Individuals With Special Needs (OASIS) has just weighed in on the new Ontario Autism Policy. In a media release David Barber, President at OASIS stated: This new policy, if implemented the way it stands, sets children and their families back Barber went on to stay: Early intervention is crucial for […] . . . → Read More: Mind Bending Politics: Ontario Agencies Supporting Individuals With Special Needs Weighs In On Ontario’s New Autism Policy

Mind Bending Politics: Child Advocates Call Autism Policy A New Low For Ontario Political Ethics

TORONTO, April 12, 2016 /CNW/ – We should all aspire to a province where a child in need receives what they need, when and where they need it. We are not there yet. This has been clear in the government’s recent announcement to address wait-times for children with autism requiring critical service. I am aware that […] . . . → Read More: Mind Bending Politics: Child Advocates Call Autism Policy A New Low For Ontario Political Ethics

Mind Bending Politics: Annoyed Ontario Liberals and Wynne’s Autism Echo Chamber:

This blog will be dedicated moving forward to following the conversations and policy discussions about Ontario’s new autism policy. The discussions going on right now are a national ethical and moral issue and those across Canada should be kept up to date as much as possible. On Tuesday there was a very emotional rally at our provincial legislature […] . . . → Read More: Mind Bending Politics: Annoyed Ontario Liberals and Wynne’s Autism Echo Chamber:

Mind Bending Politics: Experts Question Ontario’s New Autism Policy In Scathing Letter

(Ontario’s Minister of Children and Youth Services Tracy MacCharles Feeling The Heat On New Autism Policy) The Ontario Association for Behaviour Analysis (ONTABA) issued a scathing letter to Tracy MacCharles who is Ontario’s Minister of Children and Youth Services over the latest policy to strip intensive behavioural therapy from thousands of Ontario kids over 5. […] . . . → Read More: Mind Bending Politics: Experts Question Ontario’s New Autism Policy In Scathing Letter

Mind Bending Politics: Kathleen Wynne’s All Out Assault on Autistic Kids Continues With New Developments

(Ontario Premier Kathleen Wynne’s Decisions on Autism Services Politics Not Evidence Based Experts Say) There has been very strong reaction to Kathleen Wynne’s decision to de-fund therapy for kids with Autism, from experts to advocates to politicians. Wynne looks to have picked a fight with the wrong crowd, and there are developments that the situation is getting […] . . . → Read More: Mind Bending Politics: Kathleen Wynne’s All Out Assault on Autistic Kids Continues With New Developments

Mind Bending Politics: Kathleen Wynne’s Spouse Could Be Benefiting From Recent Changes to Autism Services In Ontario

(Ontario Premier Kathleen Wynne’s Spouse Jane Rounthwaite Worked as a Consultant in Autism Services While Parents Fought Government in Court in 2006) As the world celebrates Autism Awareness Day, parents in Ontario got extremely devastating news this past week that needed autism therapy would be no longer available after the age of 5. Back in […] . . . → Read More: Mind Bending Politics: Kathleen Wynne’s Spouse Could Be Benefiting From Recent Changes to Autism Services In Ontario

Mind Bending Politics: Ontario Set To Terminate Needed Therapy for a Vast Swath of Autistic Kids

(Parents Upset At Recent Changes To Autism Services In Ontario) The Ontario government recently announced changes it is going to make to the services autistic kids receive in the province. The Ontario government is looking at terminating intensive behavioral intervention therapy (IBI) for kids 5 and over, and pump more money into the controversial applied […] . . . → Read More: Mind Bending Politics: Ontario Set To Terminate Needed Therapy for a Vast Swath of Autistic Kids

Facing Autism in New Brunswick: Would My Son With Severe Autism Disorder Be Happier If I Had Listened to Robison, Ne’eman, Silberman & Other Strangers?

The picture above was taken a few days ago.  I believe anyone can look at the picture and see the happiness on my 19 year old severely autistic son Conor’s face.   What is truly remarkable is that his happiness has been a constant feature of his life despite the very severe challenges that he faces with severe autism, intellectual disability (like 50% of persons with autism), epileptic seizures, life threatening adverse reactions to some seizure meds and self injurious behaviors.  What is perhaps even more remarkable is that Conor’s happiness has been a constant in his life even without (Read more…)

Facing Autism in New Brunswick: Wow! Federal NDP Replies to My Inquiry This Morning Re Negotiations to Include ABA for Autism under Medicare

I confess I was surprised  to get a same day response this evening from the federal NDP to my question this morning addressed to party leader Thomas Mulcair.  The federal NDP committed to continuing the efforts which they have in fact made over the years in Parliament towards creation of an EFFECTIVE national autism strategy.    To Canada’s  federal NDP and leader Thomas Mulcair I say thank you. 8:20 PM (9 minutes ago) to me Dear Mr. Doherty: Thank you for providing such a helpful summary of your discussions with us on this important issue. New Democrats have a proven (Read more…) . . . → Read More: Facing Autism in New Brunswick: Wow! Federal NDP Replies to My Inquiry This Morning Re Negotiations to Include ABA for Autism under Medicare

Facing Autism in New Brunswick: Join Fredericton Green Candidate Mary Lou Babineau In Signing the Medicare for Autism Now! Petition

                          https://www.change.org/p/government-of-canada-medicare-for-autism-now Statement on Medicare for Autism now! While it is true that the tremendous advancements in medicine and technology have granted us longer lives, there are still distressing developments: for instance, the increasing number of illnesses and syndromes appearing and affecting our children. The rates of attention deficit disorder, autism and others are on the rise. The Canada Health Act has five general principles – public administration, comprehensiveness, universality, portability, and accessibility, but the federal government has not been applying them to support greater national (Read more…) . . . → Read More: Facing Autism in New Brunswick: Join Fredericton Green Candidate Mary Lou Babineau In Signing the Medicare for Autism Now! Petition

Facing Autism in New Brunswick: Fredericton NDP Sharon Scott-Levesque Supports ABA Coverage For Autism Under A New Canada Health Act Accord

Hello Harold, I wish to thank you for your message regarding the inclusion of Applied Behaviour Analysis in Medicare. As you have noted, this is an issue affecting a growing number of Canadian families, and I understand the high costs of treatment are of great concern. As you know the Canada Health Act requires provinces to cover medically necessary services without naming any particular procedure.  This means that the decision on what to cover has been left up to the provinces, creating a patchwork system where some provinces provide coverage for Applied Behavioural Analysis and others do not. – I (Read more…) . . . → Read More: Facing Autism in New Brunswick: Fredericton NDP Sharon Scott-Levesque Supports ABA Coverage For Autism Under A New Canada Health Act Accord

Facing Autism in New Brunswick: Research Review: Autism Spectrum Disorder and Epilepsy: Two Sides of the Same Coin?

My son Conor, now 19 1/2 years old, stimming, a recognized feature  of autism spectrum disorder, in this older picture. Conor, a couple of years ago, at the Chalmers Hospital  intensive care unit, where he was being treated for  rhabdomyolisis,  a seriious adverse  reaction to his epilepsy seizure meds at that time.  As the father of a son with autism spectrum disorder, intellectuall disability and epilepsy I have asked myself is these conditions are in fact related. It has been my non evidence based belief, based solely on observing, caring for and loving my son for almost 20 years (Read more…) . . . → Read More: Facing Autism in New Brunswick: Research Review: Autism Spectrum Disorder and Epilepsy: Two Sides of the Same Coin?

Facing Autism in New Brunswick: Fredericton Green Mary Lou Babineau: A Resounding YES!!! to Including Science Based ABA/IBI Autism Treatment Under Medicare

“Dear Harold, It was wonderful to speak with you, too! This is an issue that is so critical to me and to my family. Please post my response as a resounding YES!!! Hope to see you again soon, Mary Lou” The One in 68 campaign of Medicare for Autism Now! is well under way.  Candidates in various ridings are being asked to provide clear answers to the “One in 68 QUESTION”: “As a member of parliament, will you introduce or support legislation amending the Canada Health Act to include science-based autism treatment (ABA/IBI) under Medicare”?  The One in 68 refers (Read more…) . . . → Read More: Facing Autism in New Brunswick: Fredericton Green Mary Lou Babineau: A Resounding YES!!! to Including Science Based ABA/IBI Autism Treatment Under Medicare

Facing Autism in New Brunswick: Canada’s REAL National Autism Strategy – Shawn Murphy’s Bill C-304

There is currently a group receiving money from the Harper government, purportedly to develop a “National Autism Strategy”. It is an election year handout from a government which has consistently opposeed a meaningful role for the federal government in ensuring that autistic children and adults in Canada receive the treatment and services they need to live meaningful, healthy lives.   Parents in Canada have fought for many years with varying levels of success for government coverage of evidence based ABA treatment for autism disorders.  In 2006 former Charlottetown MP Shawn Murphy articulated a REAL National Autism Strategy when he introduced (Read more…)

Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

I was awake at 5:30 this morning, had some breakfast, and was enjoying a mug (not a cup, a mug) of coffee when I noticed that the time was 6:05 am.  Startled I jumped up to see if everything was OK with my son Conor.  Conor suffers from severe autism disorder and epileptic seizures, including half a dozen grand mal or tonic clonic seizures, since last Christmas. One feature of Conor’s autism disorder is that he gets up at precisely 6:01 a.m. every morning.  He often wakes up before 6:01 but stays in bed until that time and then (Read more…)

Facing Autism in New Brunswick: Conor After Another Seizure

Conor has been on  a good run for the previous 7-10 days and today was pretty much the same until 6:15 this evening when we heard a loud thump uupstairs.  His mom ran upstairs and screamed for help when she saw him convulsing on the floor with thick fluids oozing out of his mouth.  We had to keep him on his side with his head away from any corners or hard objects.   This was Conor’s 4th grand mal seizure since Christmas. Conor’s convulsions did not appear to last too long compared to some previous seizures ..  approximately 2 minutes. (Read more…)

Facing Autism in New Brunswick: Medicare for Autism NOW! Campaign Kick Off Today!

Vancouver, BC – Today, the Medicare for autism Now! Society (“MFAN”), a non-partisan, not-for-profit, all volunteer organization, announced the launch of its nation-wide One in 68 campaign. “We will be holding a Campaign Kick-off this Saturday, June 27th, at Douglas College, New Westminster, between 10:00 am and 2:00 pm,” said MFAN director and campaign manager, Dr. Sherri Brown, “It will outline the rationale for our initiative and lay-out our action and advocacy agenda leading to the federal election on October 19th, less than four months away.” The MFAN campaign takes its name from the (Read more…) . . . → Read More: Facing Autism in New Brunswick: Medicare for Autism NOW! Campaign Kick Off Today!

Facing Autism in New Brunswick: Autism, Intellectual Disability and Seizures, When Together, Constitute ONE DISORDER

In the picture above, taken 3 years ago my son erupted in sudden self injurious behavior smashing himself violently in the head a split second after he had been on the swing at his old grade school, Nashwaaksis Memorial School; a split second after he had been very smiling and happy. I captured the image because it was a series of pictures taken with an “athletic” setting on my Canon camera to capture his until then joyful, smiling activity on the swing.  In the commentary below from my January 19, 2008 commentary on Facing Autism in New Brunswick, “Autism Disorder (Read more…)

Facing Autism in New Brunswick: New Brunswick and Ontario Fail to Address Needs of Adults with Autism Disorders and their Families

Image from a CBC  British Columbia article in December 2014 Reporting on  Ground Breaking of  Construction on the $28-million Pacific Autism Family Centre  in Richmond, B.C..(Pacific Autism Family Centre)

British Columbia, Ontario and New Brunswick are 3 Canadian Provinces at different points on the adult autism care and treatment “spectrum”.  British Columbia leads with the beginning of a center and network to provide adult autism resources for  BC autism adults and their families.  Ontario and New Brunswick, on the other hand, have no systemic, credible approach to the provision of adult autism treatment and residential care for the (Read more…) . . . → Read More: Facing Autism in New Brunswick: New Brunswick and Ontario Fail to Address Needs of Adults with Autism Disorders and their Families

Facing Autism in New Brunswick: Conor Enjoyed Nature With An Osprey Day In His "Back Yard" The North Riverfront Trail, Fredericton

Conor embraced his right to enjoy nature a couple of times today (so far) with fun walking and running in his “back yard” Fredericton’s North Riverfront Trail. He also took time to throw some rocks into the St. John River along the way and check out the neighbors, the Osprey family, as they prepared their nest for some new arrivals. It may not be an evidence based treatment for autism but getting outdoors in nature makes his Dad feel much better and I believe it helps Conor too.

. . . → Read More: Facing Autism in New Brunswick: Conor Enjoyed Nature With An Osprey Day In His "Back Yard" The North Riverfront Trail, Fredericton

Facing Autism in New Brunswick: Autism and Epilepsy from Facebook to Reality: Conor Experiences Another Seizure

Earlier today I posted to my Facebook page and to the Autism Society New Brunswick FB page the link to Tonic-clonic seizures at Epilepsy.com.  I included the note that it was important for persons with autism to be aware of such seizures because of the high number of person who suffer from epileptic seizures including my autistic son.  A few hours later I got a call from the Leo Hayes High School and was informed that Conor had suffered a seizure. They did not think it was Tonic-Clonic although he had fallen and lost consciousness.  When I arrived he (Read more…)