Conor looking cool, calm and composed in his grandparents’ yard in Nova Scotia’s Annapolis Valley in November. This morning he showed just as much calm while enduring an early morning blood sample needle.
We were, once again, very proud of our Conor today. Not for demonstrating some special “autism” skill, not for anything that would be featured in a sensational media story. We were proud because Conor had blood tests scheduled again at the DECH, the local hospital where Conor spent 2 weeks in hospital last year, including 6 days in the Intensive Care Unit. He had blood tests scheduled (Read more…)
There can be hope for children with autism in BC schools Parents want evidence‐based learning programs and supports established in all B.C. school districts. February 17 2014, Surrey, BC: Recent news stories such as the Seclusion and Restraint report and most recently the story of Susan DeBeck, a Vancouver teacher who claims she was fired for standing up for her students with special needs, shows the education system is in a state of crisis when it comes to providing appropriate supports for students with special needs. A local non‐profit autism support group is reaching (Read more…)
In Neurobehavioural effects of developmental toxicity, published in the Lancet, Dr Philippe Grandjean MD and Philip J Landrigan MD, propose a global prevention strategy to address the impact of developmental neurotoxicants and the increasing numbers of children with developmental disabilities including autism, ADHD and intellectual disabilities. As the article abstract points out the authors had conducted an earlier systematic review and identified five industrial chemicals as developmental neurotoxicants with six additional developmental intoxicants identified since then:
Neurodevelopmental disabilities, including autism, attention-deficit hyperactivity disorder, dyslexia, and other cognitive impairments, affect millions of children worldwide, and some diagnoses seem to be (Read more…)
Conor went to bed at his usual time tonight. After about an hour he got up to use the washroom. As he was heading back to his room he said in his own manner of speech “See you at 6″ which is the exact time he gets up every morning. He then puts CBC NB Morning news with Terry Seguin on the television. When Conor says see you at 6 it makes me, and his Mom, feel very good. Every day, starting at 6 Conor brings us joy … great joy … starting at 6 am.
2013 was a challenging year for Conor and Dad health wise. I spent a week in acute care with some respiratory issues and Conor spent 2 weeks in hospital, including a six day stay in the ICU recovering from a life threatening adverse reaction to his seizure medication. Overall though life was good in 2013, including life in Conor’s “back yard”, Fredericton’s North Riverfront Trail. We are just a couple minutes walk from the trail and the St. John River and we enjoyed the trail as often we could.
. . . → Read More: Facing Autism in New Brunswick: Life in Conor’s "Back Yard", Fredericton’s North Riverfront Trail, in 2013
The belief that there is a single defining autism spectrum disorder brain dysfunction must be relinquished. – Waterhouse and Gillberg, Why Autism Must Be Taken Apart I am not going to offer too much comment on the article by Lynn Waterhouse and Christopher Gillberg itself which, as the title indicates, argues that autism must be taken apart, at least for research purposes. I have not yet purchased or read the article. The abstract speaks very clearly and even I, as an ignorant, hysterical, misguided parent of a son WITH severe autism disorder, intellectual disability and epileptic seizures can understand. Waterhouse (Read more…)
Following this comment is a re-posting of a comment I posted on this site 7 years ago in 2007 about the abysmal state of autism youth and adult residential care and treatment in New Brunswick, Canada. 7 years later and nothing has changed. Well, one thing has changed, a very important part of my life has changed.
My son with severe autism and intellectual disability is now 7 years older…. and his Mom and Dad are also 7 years older.
Time marches on. Our autistic children are becoming autistic adults. Our political and government leaders have sat on the sidelines (Read more…)
The Simon Foundation Autism Research Initiative, SFARI, continues to represent studies involving only high functioning autistic participants to the public as “autism” studies. In the Children with autism have trouble recalling memories article posted January 3, 2014 SFARI reports as an “autism” study a study which excluded as participants the 50% of those with an Autism Spectrum Disorder who also have an intell5ectual disability (World Health Organization estimate, September 2013):
“Children with autism have trouble recalling memories
Laura Geggel 3 January 2014 Children with autism struggle to remember details of events from their own lives, reports (Read more…) . . . → Read More: Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research
The allegedly UNBREAKABLE blade of my window ice scraper snapped off under the strain of several days of heavy ice scraping in this December’s cold and snowy Canadian winter weather. In fairness to the manufacturers and distributors of the “Unbreakable” ice scraper blade I have used it well past the 3 year limited warranty and it has seen lots of use in previous Canuck winters. People, including parents of severely autistic children, can also break particularly if they face other socio-economic and/or family and challenges.
Not all parents break in the face of the challenges and fears that haunt (Read more…)
Some promote the view that autism disorders are “gifts” if only society could understand, change its ways and accept the gifts. The autism as a gift view, is irrational nonsense. It thrives by simply ignoring the evidence of challenges presented by autism disorders including those like wandering or elopement which sometimes lead to tragic consequences.
Like many with autism disorders my son once left our home unnoticed – he slipped out of the house while I was occupied on a business call. When the call ended and I couldn’t find him I called 911 and was able to recover him (Read more…)
Conor would always react negatively when he heard the Hershey’s Kisses Christmas bells commercial. The sound of the bells, even the sight of the bells, almost invariably agitated him. Recently I recorded a couple of Frosty the Snowman shows for Conor using our television DVR system. The Hershey’s Kisses Christmas bells commercial was included as one of the commercials during the broadcast of the Frosty episodes. Today I grabbed a coffee from the kitchen to go back upstairs to do some work on my laptop and realized Conor was playing, and replaying several times, the Hershey’s Kisses Christmas bells commercial (Read more…)
I felt like a bit of a superstar on the Conor page this morning. Yesterday we took Conor to see “Frozen” in the mall theater and we got a few things done but tried to avoid going out on the roads with some of the frantic Christmas driving going on. We overlooked a few basics in restocking the fridge. Conor gets up early at 6 am sharp EVERY day without fail so there was no time to run out for more groceries. Our neighborhood Tim Hortons was open though and it is close enough for a pleasant early morning walk (Read more…)
News ReleaseFor Immediate Release December 10, 2013
CHILDREN WAITING TOO LONG FOR ACCESS TO AUTISM PROGRAMS, AUDITOR GENERAL SAYS (TORONTO) Screening for autism is often occurring late, and children who are diagnosed then face long waits for access to some of the programs that could help them, Auditor General Bonnie Lysyk says in her 2013 Annual Report. In addition, certain services are not being directed to those that may (Read more…)
Authors of a report published in the Comprehensive Guide to Autism 2014, pp 1585-1609 better duck fast! The article abstract reviews the highly toxic nature of aluminum and conclude that research data suggest that vaccines containing aluminum adjuvants may be a contributing etiological factor in the increasing incidence of autism. Such an assertion is forbidden by health policy authorities if not by science:
“Abstract Impaired brain function, excessive inflammation, and autoimmune manifestations are common in autism. Aluminum (Al), the most commonly used vaccine adjuvant, is a demonstrated neurotoxin and a strong immune stimulator. Hence, adjuvant Al has the necessary properties (Read more…) . . . → Read More: Facing Autism in New Brunswick: Oh Oh!! Authors of Report Concluding Aluminum Vaccine Ajuvants Are Contributing To Increasing Incidence of Autism Disorders Better DUCK!
Emotional Reactions of children with Autism, Ms Heather Nuske Olga Tennsion Autism Research Centre, Latrobe University
For years the autism professional community accepted the non evidence based speculation that autism disorders were caused by detached, cold mothers. The professions’ embrace of this fantasy caused serious harm to many families. The other side of the coin is that persons with autism disorders are also cold, detached, do not show typical emotional responses. The cold autistic persons theory has endured but is now under serious challenge from some of the innovative, fresh thinkers at the Latrobe University’s Olga Tennison Autism Research (Read more…)
Julia Rendleman/Post-Gazette Jeffrey Maloney, 19, is comforted by his mother, Lisa, during a family outing at the Pittsburgh Zoo & PPG Aquarium. In a rarity in the mainstream media the Pittsburgh Post-Gazette published an honest, informed article by Mark Roth and Julia Rendleman on the challenges faced by a family with two children on the autism spectrum, one diagnosed as PDD and the other an adult son with severe autism disorder and the impact on the family, the Maloney family, of caring for them. The article was the first in a 4 part series on autism disorders run by the Pittsburgh Post-Gazette (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism Media Rarity: Pittsburgh Post-Gazette Autism Series Includes Severe Autism And Family Impact
Research to date benefiting persons suffering from autism disorders can be summed up in two words: Lovaas, ABA. The work done by Dr. Ivar Lovaas has been applied successfully for decades as reported by the US Surgeon General’s office (1999) and by the American Academy of Pediatrics (2007), reaffirmed (2010):
The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism Research Progress To Date In Two Words: Lovaas, ABA
The Chalmers Foundation has officially announced that it has met its funding goal and will soon be purchasing the patient monitoring system that is instrumental in helping the Chalmers Hospital Intensive Care Unit save many lives … including my son Conor’s for which his Mom and Dad will always be grateful: “The Chalmers Foundation shared a link. September 25 The Foundation along with the DECH Auxiliary Inc. have officially reached our $600,000 goal to support the purchase of a new monitoring system for the ICU here at the DECH!! A HUGE THANK YOU to all donors, supporters, staff and (Read more…)
. . . → Read More: Facing Autism in New Brunswick: Excellent! Chalmers ICU Team Reaches Its Funding Goal to Purchase New Patient Monitoring Equipment!
Autism Speaks has entered into a Research PACT to continue its focus on “pure autism“ (referred to in the PACT as core symptom autism), while ignoring 50% of the autism spectrum, those with intellectual disability (WHO, September 2013):
“Working together, the PACT team is developing a platform of preclinical tests to evaluate and compare new medications for the core symptoms of autism.“
Vivanti and his colleagues offered the term “pure autism” to refer to the tendency of autism studies to intentionally exclude subjects with autism AND intellectual disability:
“the question of the nature (Read more…)
During recent weeks the TPGA “autism experts”, have done a great favor to children, like my son, who suffer from severe autism disorders. The TPGA autism wizards told parents like me who speak candidly about the deficits that limit and impair his ability to function independently in this world that we are making “monsters” of ours and all autistic children. Our children’s autism disorders, in the view of the humble yet brilliant autism experts are not really disorders, despite the title, despite the medical diagnoses that identified them as autistic. For our children’s benefit we should learn to accept (Read more…)
Laverne Stewart of Fredericton’s Daily Gleaner reports (September 24, 2013) that National autism advocate Senator Jim Munson, shown left in his Parliament of Canada photo, is frustrated, that after years of working to secure a national autism disorder spectrum strategy, Munson said the federal government has done little to address Canada’s national autism crisis: “In a phone interview with The Daily Gleaner, he said the federal government has started to look at what approach each province is taking to address autism. “They’re different all across the county,” he said. Munson said people across Canada need to keep pushing the (Read more…) . . . → Read More: Facing Autism in New Brunswick: Senator Jim Munson Says Ottawa Has Done Little to Address Canada’s Autism Crisis
“Dr. Lynn Waterhouse @autismideasfail 6 Sep http://bit.ly/17WbZVi #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX”
The above Tweet by Dr. Lynn Waterhouse, author of Rethinking Autism: Variation and Complexity, who also worked with Dr. Lorna Wing on the APA DSM-III-R diagnostic criteria for autism, should be read by any existing DSM5 committee members charged with developing modifications to DSM-5 diagnostic criteria. The DSM-5 has doubled down on the failed approach of simplifying autism contrary to solid evidence and research. Dr Waterhouse’s (Read more…) . . . → Read More: Facing Autism in New Brunswick: #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX
CHEO: No Teddy Bears & No Autism Program for Severely Challenged Children
The Children’s Hospital of Eastern Ontario has been added as a respondent in a human rights proceeding, and accused of discrimination, after it kicked an autistic child with global developmental delay, severe intellectual disability, out of an early intervention program.
In an Ottawa Citizen article Don Butler reported:
“CHEO declined to comment specifically on the case Thursday. But in an email, it said the hospital’s care providers are “incredibly committed to the well-being of kids and would never discriminate against a child because of a disability.
“Our (Read more…)
“Children with autism who are older than 13 years and have low intelligence are at the greatest risk of having epilepsy, says one of the largest epidemiological studies on the issue to date1. Children are typically diagnosed with epilepsy after having at least two seizures — uncontrolled surges of electrical activity in the brain. About 2 percent of the general population has epilepsy2. Most studies peg its prevalence among people with autism at 30 percent. The new study, published 4 July in PLoS One, breaks down this prevalence by age. It finds that among children (Read more…) . . . → Read More: Facing Autism in New Brunswick: SFARI Highlights Serious Risk of Epilepsy for Young Children and Teens with Autism and Intellectual Disability