The Autism Society Canada web site was down briefly and I had hoped, notwithstanding past experience, that the ASC would have started presenting an accurate picture of autism disorders to the Canadian public and families with autism disorders. My hopes, faint as they might have been, were dashed again. ASC, on its “new” web site . . . → Read More: Facing Autism in New Brunswick: Autism Society Canada Misrepresents Autism On Its Web Site Makeover By Hiding The Many with Autism AND Intellectual Disability
A much higher percentage of people with autism spectrum disorders suffer from epileptic seizures than among persons in the general population. At the severe end of the autism “spectrum” it has been estimated that as many as 39% also suffer from seizures. My severely autistic, intellectually challenged son Conor suffers from seizures including tonic . . . → Read More: Facing Autism in New Brunswick: SUDEP Awareness Day and Autism Disorders
The Liberal platform is published and there are no commitments to address autism issues, no mention of autism disorders. In particular there is no mention of any intention to change the current system of adult autism care from generic group homes lacking autism trained staff, hospital wards, the Regional (in fact the only) tertiary . . . → Read More: Facing Autism in New Brunswick: Autism and the Liberal Party 2014 Election Platform: Nothing on Autism – No Adult Autism Care Centre
I didn’t see this autism “controversy” brewing. The authors of an article published in the Sage Autism journal have challenged the credibility of the US CDC autism prevalence figures. The full article is on line and free for viewing (PDF also available free) at: Should we believe the Centers for Disease Control and Prevention’s . . . → Read More: Facing Autism in New Brunswick: US CDC Autism Prevalence Estimates Challenged
JAMA study points out US lifetime costs of care for a person with autism disorder and intellectual disability will approximate $2.4 million US (ASD W/Out ID #1.4 million). For children special education and parental productivity loss were largest cost components. For adults residential care, supportive living accommodation individual productivity loss and much higher productivity . . . → Read More: Facing Autism in New Brunswick: JAMA Study: $2.4 Milliion (US) Lifetime Cost of Care for Person with Autism and Intellectual Disability
Conor Doherty on World Autism Awareness Day 2014, as I tried to take a “selfie” of the two of us wearing blue, gave his old Dad an unexpected hug. As in this pic, Conor brings us great joy but his autism is a disorder which restricts his life and causes him harm. Joel Rubinoff father of . . . → Read More: Facing Autism in New Brunswick: Joel Rubinoff’s Angry, Ill Informed, Misleading Autism Rhetoric
In the picture above SFARI presents news of two “autism” studies which purport to find that brains of persons with “autism” are overly connected as compared to those in control groups. In fact both studies intentionally and expressly excluded persons with autism and intellectual disability, approximately 50% of those with autism spectrum disorders . . . → Read More: Facing Autism in New Brunswick: Intellectual Dishonesty: Autism Disorders Misrepresentation Via High Functioning Autism Only Research
Thank You Suzanne Wright!
It was a good week for reality based autism advocacy for two reasons. First, I was very encouraged by Suzanne Wright’s very honest description of the many challenges facing persons with autism disorders and their families in Autism Speaks to Washington – A Call for Action. Second I was very . . . → Read More: Facing Autism in New Brunswick: An Excellent Week For Autism Advocacy! Suzanne Wright Speaks Out and John Elder Robison Resigns
Research to date benefiting persons suffering from autism disorders can be summed up in two words: Lovaas, ABA. The work done by Dr. Ivar Lovaas has been applied successfully for decades as reported by the US Surgeon General’s office (1999) and by the American Academy of Pediatrics (2007), reaffirmed (2010):
The effectiveness of ABA-based . . . → Read More: Facing Autism in New Brunswick: Autism Research Progress To Date In Two Words: Lovaas, ABA
Autism Speaks continues its betrayal of the 50% of persons on the autism spectrum, those with intellectual disability, those for whom autism is a disorder not a superior way of thinking or the possible subject of a new TV comedy series or a career as a well paid “autism” advocate with “Autism“ Speaks.
In the October . . . → Read More: Facing Autism in New Brunswick: High Functioning Autism Speaks Continues Betrayal of 50% of Autism Spectrum With Intellectual Disability
Autism Speaks has entered into a Research PACT to continue its focus on “pure autism” (referred to in the PACT as core symptom autism), while ignoring 50% of the autism spectrum, those with intellectual disability (WHO, September 2013):
“Working together, the PACT team is developing a platform of preclinical tests to evaluate and compare new . . . → Read More: Facing Autism in New Brunswick: Autism Speaks Enters Into "PURE" Autism Research PACT; Excludes Autism With Intellectual Disability
Laverne Stewart of Fredericton’s Daily Gleaner reports (September 24, 2013) that National autism advocate Senator Jim Munson, shown left in his Parliament of Canada photo, is frustrated, that after years of working to secure a national autism disorder spectrum strategy, Munson said the federal government has done little to address Canada’s national autism crisis: . . . → Read More: Facing Autism in New Brunswick: Senator Jim Munson Says Ottawa Has Done Little to Address Canada’s Autism Crisis
October is Autism Awareness Month in Canada. You would never know it based on the contribution made by Canada’s federal government which has taken a strict, division of constitutional jurisdiction, approach to autism disorders in Canada. In other words it has said that addressing Canada’s growing National Autism Crisis is not a concern . . . → Read More: Facing Autism in New Brunswick: October is Autism Awareness Month in Canada, Canadian Government Still Doing Nothing Eh Mike Lake?
Dr. David H. Gorski, who is NOT an autism expert, somewhat ironically, attacks parents, professionals and journalists who disagree with his autism disorders opinions as “quacks”
Dear Dr. David H. Gorski. Thank you for acknowledging your total lack of autism expertise. For the benefit of readers unfamiliar with your “style:” I did . . . → Read More: Facing Autism in New Brunswick: My Reply to Non Autism Expert Dr. David H. Gorski Also Known as ORAC
New Brunswick is a Canadian, and North American, leader in early autism intervention and school autism services. I do not doubt that that statement is enough to prompt a retort from many jurisdictions. New Brunswick is not one of the wealthiest jurisdictions in Canada, let alone North America, but the fact is that New . . . → Read More: Facing Autism in New Brunswick: New Brunswick is a Canadian (and North American) Leader In Early Autism Intervention and School Autism Services
The notorious autism hate letter that targeted an Ontario family and their autistic child has sparked horror and outrage around the world. As the father of a 17 year old son with severe autistic disorder, profound developmental delays and tonic-clonic (grand mal) seizures I recoiled when I heard the news of this hateful act . . . → Read More: Facing Autism in New Brunswick: 2 Harmful Acts: Autism Hate Letter And CHEO Removing Autistic Child With GDD From Early Intervention Program
CHEO: No Teddy Bears & No Autism Program for Severely Challenged Children
The Children’s Hospital of Eastern Ontario has been added as a respondent in a human rights proceeding, and accused of discrimination, after it kicked an autistic child with global developmental delay, severe intellectual disability, out of an early intervention program.
In . . . → Read More: Facing Autism in New Brunswick: Children’s Hospital of Eastern Ontario (CHEO) Writes Off Child With Autism AND Global Developmental Delay (Intellectual Disability)
Photos by Harold L Doherty One of the more irrational features in some autism discussions is the claim that being non verbal is not a significant indicator of autism severity. Anyone who thinks that verbal communication is not a significant factor in daily functioning is fooling themselves. Communication is important for humans as . . . → Read More: Facing Autism in New Brunswick: Autism Severity: Verbal Communication Doesn’t Count? Crows Say Otherwise!
Seizures and epilepsy are serious issues for persons with autism and their families as we learned first hand in our home on November 17, 2012 when Conor suffered a very serious seizure. Following is a publicity release issued in respect of Silently Seizing and author Caren Haines, RN (Haines also received input from . . . → Read More: Facing Autism Symptoms in New Brunswick: The Damaging Impact Of Seizures On Individuals With Autism
My favorite blog dedicated to autism research is Questioning Answers, by researcher Paul Whiteley, and I recommend it for anyone interested in the subject. Whiteley presents autism research information in a manner that can be digested by this humble autism dad and is not condescending. The content is broad, balanced and clear . . . → Read More: Facing Autism Disorders in New Brunswick: Questioning Answers – An Excellent Autism Research Blog
I was surprised to see that a preliminary study of stem cell treatment of autism disorders is proceeding with FDA approval in the United States. Stem Cells as possible treatments for autism have been mentioned for some time but have subjected to disparaging commentary for several reasons including the usual anti cure attacks . . . → Read More: Facing Autism Disorders in New Brunswick: FDA Approved Stem Cell Autism Treatment Preliminary Study
On Twitter in the past 24 hours the questionably named Thinking Persons Guide to Autism does what it often does: distributing unproven, non evidence based, opinions as representing all there is to know about autism.
On this occasion the TPGA Re-Tweeted one person’s opinion about meltdowns; offering the less than carefully thought out . . . → Read More: Facing Autism Disorders in New Brunswick: All Autism Meltdowns Are Not Panic Attacks
Conor at Black Rock on the Minas Basin, the eastern extremity of the Bay of Fundy, shared by New Brunswick and Nova Scotia, and home of the highest tides in the world. NB and NS also share a lack of commitment to helping autistic, particularly severely autistic, youth and adults.
Nova Scotia is . . . → Read More: Facing Autism in New Brunswick: Adults with Autism Disorders Not on the Political Agenda In Nova Scotia or New Brunswick
Autism, it’s gotta be genetic, even if we can’t see the evidence No one disputes that autism has a genetic link or links somewhere, now if only we can find it ………… or them. “Researchers say they have identified gene mutations that contribute to autism in three separate studies.
The mutations identified were rare . . . → Read More: Facing Autism in New Brunswick: Autism Is Genetic Eh? Really?
A New Brunswick Telegraph-Journal June 16, 2012 editorial, reprinted in its’ entirety below, has called for a flexible model of inclusion for New Brunswick public education. The editorial references education policy analyst Paul Bennett who gave a presentation Thursday at the Atlantic Human Rights Centre conference on inclusive education.
BE . . . → Read More: Facing Autism in New Brunswick: Telegraph-Journal: New Brunswick Public Education Must Be Inclusive and Flexible