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Facing Autism in New Brunswick: Time To Divide The Heterogeneous DSM-5 Autism Spectrum Disorder and Free the Invisible, Severely Autistic From Oppression

Associated Morbidity and Mortality

Health care utilization and costs are substantially higher for children and adolescents with ASDs compared with children without ASDs,89–91 and available data suggest that mortality is increased as well (standardized mortality ratio: 2.4–2.6).92,93 The increased mortality in ASDs is thought to be largely, but not completely, accounted for by the increased mortality associated with mental retardation and epilepsy. . . . → Read More: Facing Autism in New Brunswick: Time To Divide The Heterogeneous DSM-5 Autism Spectrum Disorder and Free the Invisible, Severely Autistic From Oppression

Facing Autism in New Brunswick: Mother and Severely Autistic Son Evicted by Fredericton Non-Profit Housing Corporation Will Be Homeless Friday, August 1

“People with Autism Spectrum Disorder may be overly dependent on routines, highly sensitive to changes in their  environment, or intensely focused on inappropriate items. … the symptoms of people with ASD will fall on a continuum, with some individuals showing mild symptoms and others having much more severe symptoms“ American Psychiatric Association, Autism Spectrum Disorder Fact Sheet   [Underlining added for emphasis - HLD] Mistie Delorey is a single mother currently residing in a property of the Fredericton Non-Profit Housing Corporation.  Her son  with severe autism will turn 7 two days from now, on July 31, (Read more…) . . . → Read More: Facing Autism in New Brunswick: Mother and Severely Autistic Son Evicted by Fredericton Non-Profit Housing Corporation Will Be Homeless Friday, August 1

Facing Autism in New Brunswick: Is that Dentist Sticking The Needle in Your Mouth Properly Trained? How About the Therapist Working with Your Autistic Child?

NB Premier David Alward whose government has Produced a New Autism  Intervention Policy with No Provision for Funding Training of Autism Support  Workers treating New Brunswick’s autistic pre-schoolers.  The next time you sit in a dentist’s chair will you have to wonder whether the dental assistant or even the dentist is properly trained?  Will you have to ask whether your child’s teacher has a university education? The answer to both of these questions is obviously no.  Medical and education workers generally are required to be properly trained. Nor do we want untrained “mechanics” servicing our cars.  In New Brunswick (Read more…)

Facing Autism in New Brunswick: For CNN and Francesca Happé Adult Autism Is A Bouquet of Pretty Pink Flowers

CNN which loves to portray high functioning autism and Aspergers as autism has done it again with a feature called “Autism Is Growing Up” which … of course … features only adult persons with High Functioning Autism and Aspergers.  In fact CNN and its accomplice Francesca Happé present 7 full stories of persons with high functioning autism and Aspergers. In addition an 8th adult with Aspergers, Canadian Zoey Roberts, is featured on the opening page of this creative portrayal of Aspergers as autism telling people that “autism is not a tragedy” which of course it isn’t if you happen to exist on (Read more…)

Facing Autism in New Brunswick: DSM or ICD, Either Way Autism is a DISORDER, or Group of Disorders, Not "Just a Difference"

There are a number of very high functioning persons claiming to be autistic or claiming to have a “syndrome” or “different way of thinking”.  Autism is a difference not a disorder they cry out in anger against all efforts to find treatments and cures, such efforts usually led by parents and family members of severely autistic children and adults.  The great mystery to me is why they embrace the term “autism” to describe their “difference” but reject the label as representative of a medical diagnosis or disorder. In my humble opinion it is very unfortunate that both the DSM-5 and (Read more…)

Facing Autism in New Brunswick: Autism Reality Check: Autism Is Not A Person – It Is A Disorder, A Group of Disorders or A Group of Symptoms

Autism is not a person.   Autism is defined by some authorities as a disorder, by others as “autisms” or a varied group of complex heterogeneous disorders and by still other authorities as a group of symptoms which together have come to be referred to as “autism”.  Autism is not, however, a person and because of that indisputable fact it can not sign petitions lobbying government institutions to abolish legislation passed to fight autism.  Autism can not oppose the rights of actual persons to be cured or treated for autism and can not oppose the rights of parents and other (Read more…)

Facing Autism in New Brunswick: Waterhouse & Gillberg: Why Autism Must be Taken Apart

The belief that there is a single defining autism spectrum disorder brain dysfunction must be relinquished. – Waterhouse and Gillberg, Why Autism Must Be Taken Apart I am not going to offer too much comment on the article by Lynn Waterhouse and Christopher Gillberg itself  which, as the title indicates, argues that autism must be taken apart, at least for research purposes.  I have not yet purchased or read the article. The abstract speaks very clearly and even I, as an ignorant, hysterical, misguided parent of a son WITH severe autism disorder, intellectual disability and epileptic seizures can understand. Waterhouse (Read more…)

Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research

The Simon Foundation Autism Research Initiative, SFARI, continues to represent studies involving only high functioning autistic participants to the public as “autism” studies.  In the Children with autism have trouble recalling memories article posted January 3, 2014 SFARI reports as an “autism” study a study which excluded as participants the 50% of those with an Autism Spectrum Disorder who also have an intell5ectual disability (World Health Organization estimate, September 2013):

“Children with autism have trouble recalling memories

Laura Geggel 3 January 2014 Children with autism struggle to remember details of events from their own lives, reports (Read more…) . . . → Read More: Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research

Facing Autism in New Brunswick: 2013: The Year Of Autism’s Grand Error, The DSM5 Autism Spectrum Disorder

Photo by Harold L Doherty Edward Ritvo-Susan Swedo Shootout at  the IMFAR Corral, Sheraton, Toronto, May 18, 2012

The year 2013 will be remembered as the year the simplified DSM-5 Autism Spectrum Disorder definition was imposed on a very complex and diverse group of disorders and/or symptoms.  Catherine Lord, Susan Swedo and other members of the DSM-5 committee responsible for the definition change simply ignored criticisms of their proposals and pushed ahead because, in their minds, they know better than their critics.

It would be one thing if the DSM5 Autism Spectrum Disorder critics were simply parents like me. (Read more…) . . . → Read More: Facing Autism in New Brunswick: 2013: The Year Of Autism’s Grand Error, The DSM5 Autism Spectrum Disorder

Facing Autism in New Brunswick: Autism Media Rarity: Pittsburgh Post-Gazette Autism Series Includes Severe Autism And Family Impact

Julia Rendleman/Post-Gazette Jeffrey Maloney, 19, is comforted by his mother, Lisa,  during a family outing at the Pittsburgh Zoo & PPG Aquarium. In a rarity in the mainstream media the Pittsburgh Post-Gazette published an honest, informed article by Mark Roth and Julia Rendleman on the challenges faced by a family with two children on the autism spectrum, one diagnosed as PDD and the other an adult son with severe autism disorder and the impact on the family, the Maloney family,  of caring for them.  The article was the first in a 4 part series on autism disorders run by the Pittsburgh Post-Gazette (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism Media Rarity: Pittsburgh Post-Gazette Autism Series Includes Severe Autism And Family Impact

Facing Autism in New Brunswick: Neurodiversity Cultists Take Note: My Son Is A Joy; His Autism Is A DISORDER

Many in the Neurodiversity cult, which irrationally embraces and worships the autism segment of the autism disorder diagnosis they sought for themselves, or their children, while discarding the DISORDER component of that label have, once again, attacked parents and other family members who dare to counter their perverse, ill informed ideology with honest depictions of their own kids autism disorders. Suzanne Wright’s recent, honest, accurate, depiction of the challenges faced by so many with autism disorders and their families, has sent the autism cultists into what Autism Jabberwocky has called a collective conniption. Among the usual hate filled knee, jerk (Read more…)

Facing Autism in New Brunswick: Autism Speaks Betrays Children, Adults With Severe Autism Disorders: Autism Speaks Blogger Calls Autism A Blessing

Since my 17 year old son was diagnosed with autistic disorder and profound developmental delays (and more recently, like many who share those conditions, with epileptic seizures) little has been done to advance our knowledge of causes, to find treatments or cures for autism disorders.  In terms of our understanding of autism we have largely regressed in public understanding of autism disorders.  There are some who talk about autism realistically but there are many who have adopted the perspective of some with very high functioning autism that autism is not a disorder after all.  It is very disheartening to (Read more…)

Facing Autism in New Brunswick: Autism Action Network: It Started: DSM5 Used To Revoke Autism Diagnosis

The Autism Action Network reports, in It started: DSM5 used to revoke autism diagnosis,  that the revoking of autism diagnoses under the DSM5 regime and the resulting denial of services and educational placements for people with autism disorders has begun.   Here in Canada the Childrens’ Hospital of Eastern Ontario, CHEO, has excluded from its autism early intervention program a child it described as having global developmental delay, the express exclusionary phrase used in the DSM5 Autism Spectrum Disorder diagnostic definition.  Swedo, Lord and company were warned this would happen and stubbornly insisted that their vision (Read more…)

Facing Autism in New Brunswick: 50% Some WHO Autism Awareness: Autism and Intellectual Disability 50%

Questions and answers about autism spectrum disorders (ASD) Online Q&ASeptember 2013 Q: Do persons with autism always suffer from intellectual disability? A: The level of intellectual functioning is extremely variable in persons with ASD, ranging from profound impairment to superior non-verbal cognitive skills. It is estimated that around 50% of persons with ASD also suffer from an intellectual disability. The above information is taken from the World Health Organization website page providing Q and A about autism spectrum disorders.  Some will always choose to believe that autism and intellectual disability are totally unrelated concepts.  It is easier to do (Read more…) . . . → Read More: Facing Autism in New Brunswick: 50% Some WHO Autism Awareness: Autism and Intellectual Disability 50%

Facing Autism in New Brunswick: #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX

“Dr. Lynn Waterhouse @autismideasfail 6 Sep http://bit.ly/17WbZVi   #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX”

The above Tweet by Dr. Lynn Waterhouse, author of Rethinking Autism: Variation and Complexity,  who also worked with Dr. Lorna Wing on the APA DSM-III-R diagnostic criteria for autism,  should be read by any existing DSM5 committee members charged with developing modifications to DSM-5 diagnostic criteria. The DSM-5 has doubled down on the failed approach of simplifying autism contrary to solid evidence and research.  Dr  Waterhouse’s (Read more…) . . . → Read More: Facing Autism in New Brunswick: #autism gene AUTS2 tied to dyslexia ADHD epilepsy ID motor delay microcephaly MORE SYMPTOMS should be part of ASD DX

Facing Autism in New Brunswick: Alex Spourdalakis Killing Exploited by Neurodiversity Extremist Emily J. Willingham.

Parents who speak honestly about the realities of autism disorders and the few journalists who dare challenge established views of autism causation are under attack …. again … by Forbes Columnist Emily J. Willingham, formerly known, a few years before her Forbes career, as blogger Daisy May Fatty Pants.  Not content to express her legal opinions about the outcome of the criminal charges that have been brought against the accused killers of Alex Spourdalakis … his mother and a woman described by Willingham as Alex’s “godmother” Willingham launches into a tirade against parents who describe the harsher realities affecting those with severe autism disorders, (Read more…)

Facing Autism in New Brunswick: Autism`s 40% With Intellectual Disability? Auti$m $peak$ Doesn’t See YOU, Doesn’t Speak For YOU!

Autism Speaks has done much to create publicity around the word autism, the color blue, puzzle pieces and … some very talented, high functioning individuals with autism diagnoses like Alex Plank and J. E. Robison.  In terms of its public statements and presentations though it does little to nothing to  raise awareness about one very basic fact: autism has a very close relationship with intellectual disability to the extent that 40% of persons with autism spectrum diagnoses (DSM-IV) also have intellectual disability.  Prior to the DSM-IV and prior to the addition of PDD-NOS and Aspergers persons with intellectual disability constituted (Read more…)

Facing Autism in New Brunswick: Dear Anna Kennedy: Please Stop Misrepresenting Autism, Autism Is A Health DISORDER NOT a Gift

Anyone  described as “having autism” or “being autistic”  would have received an autism disorder diagnosis  pursuant, in all likelihood, to either the DSM or the ICD 

Dear Anna Kennedy

My 17 year old son Conor who was diagnosed 15+ years ago with “autistic disorder” (now autism spectrum disorder) and profound developmental delays ( a euphemism for intellectual disability) is truly a gift. Conor brings great joy to our lives as shown on the sample pictures that follow.  While Conor is a joy, however, his autism disorder is not, however, a joy.  Nor is his autism disorder a GIFT.  Conor’s (Read more…) . . . → Read More: Facing Autism in New Brunswick: Dear Anna Kennedy: Please Stop Misrepresenting Autism, Autism Is A Health DISORDER NOT a Gift

Facing Autism in New Brunswick: DSM-5 Autism Emperors’ Ridiculous Assumption

“The fifth edition of the diagnostic and statistical manual of mental disorders (DSM-5) (APA in diagnostic and statistical manual of mental disorders, Author, Washington, 2013) has decided to merge the subtypes of pervasive developmental disorders into a single category of autism spectrum disorder (ASD) on the assumption that they cannot be reliably differentiated from one another.” LY Tsai, M. Ghaziuddin (JADD 2013) DSM-5 ASD Moves Forward into the Past

I agree with the observations of Tsai, Ghazuiddin and Dr. Waterhouse.  I have none of their outstanding academic and research  qualifications.  I am a humble Canadian labour lawyer, the (Read more…) . . . → Read More: Facing Autism in New Brunswick: DSM-5 Autism Emperors’ Ridiculous Assumption

Facing Autism in New Brunswick: 40% Intellectual Disability In Autism Disorders: Coincidence or Consequence?

I have never subscribed to the assumption that Intellectual Disability is a co-morbidity as described by the authors of a new study examining Intellectual  Disability in Autism: (unrelated in etiology and causality from the ASD itself)  I have been frustrated by the historical tendency of  ”autism” researchers to exclude intellectually disabled autistic subjects from their research studies.  I am very disappointed with Dr. Lord, Dr. Swedo, Dr. King and other APA members for their efforts to further the dissociation of Intellectual Disability from Autism Spectrum Disorder (s) in the DSM5.  I have always believed, as the father of (Read more…)

Facing Autism in New Brunswick: CBC News Misrepresents Autism By Omitting Any Reference to Intellectual Disability

In “The  new definition of autism” CBC News provides detailed descriptions of autism as represented by the five pervasive developmental  disorders in the DSM-IV and the Autism Spectrum Disorder in the now published DSM5.  With one major exception the article is a good summary of autism disorders pre and post DSM5. On another positive note the article expressly references ABA/IEBI as the primary evidence based intervention for autism treatment.  The major exception to this otherwise balanced, thorough article is the failure to mention, while describing conditions commonly associated with autism,  the substantial numbers of  persons with autism (Read more…)

Facing Autism in New Brunswick: DSM5 Autism Spectrum Disorder Has Arrived: Are Ari Ne’eman and John Elder Robison Still Autistic?

The DSM5 has been released and is now beginning to impact the world of autism.  Most discussion of the DSM5′s New Autism Spectrum Disorder has ignored the effect of the language of mandatory criterion A which will act to exclude from autism diagnosis those with severe intellectual disability. Most of the discussion has focused on the potential exclusionary impact on those who would meet DSM-IV Asperger’s criteria.  That being said the DSM5 autism team leaders have assured the high functioning end of the DSM-IV autism spectrum that those currently diagnosed with Asperger’s or high functioning autism will not lose their (Read more…)

Facing Autism in New Brunswick: Autism and Seizures: Conor’s Second Grand Mal Seizure (That We Know Of)

The pictures above were initially posted on this site on May 26, 2012, several months before Conor’s 1st known Grand Mal Seizure in November. As I posted then, external conditions were perfect and Conor was enjoying a favorite activity in a favorite location when he suddenly began hitting himself in the head. I don’t  know what caused it, Conor lacks the communication skills to explain, but it was definitely internal. Together with many similar circumstances including sudden closing of his eyes and looking blankly into the distance I reported them to his pediatrician as possible seizure activities. The pediatrician did (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism and Seizures: Conor’s Second Grand Mal Seizure (That We Know Of)

Facing Autism Symptoms in New Brunswick: World Autism Awareness Day 2014

If past is prologue very little awareness of the harsher realities of autism symptoms will be generated on this WAAD, April 2, 2013.  Next year, in 2014,  and for years thereafter, the streamlined DSM5 autism will also eliminate many on the very high functioning and low functioning ends of the autism spectrum.  It is unfortunate that in the DSM5 Autism Spectrum Disorder definition the American Psychiatric Association is revising the medical definition of autism spectrum disorder in ways that are expected to change its diagnostic characteristics. There is no good reason to wreck havoc on autism research and diagnosis . . . → Read More: Facing Autism Symptoms in New Brunswick: World Autism Awareness Day 2014

Facing Autism in New Brunswick: New Brunswick’s Extreme Inclusion Fantasy Harms Some Children With Severe Autism Challenges

Education and Early Childhood Development Minister Jody Carr   EECD/NBACL Event Focus on Inclusion: Walking in our shoes. Minister Carr spoke for 40 minutes, repeating the word  inclusion 30 – 40 times but never mentioning  evidence based  accommodation of individual needs and challenges 

Premier David Alward’s government has transferred control over New Brunswick education policies and practices to the NB Association for Community Living.  The NBACL is, beyond doubt, an organization of  people with good intentions committed to improving the lives of those with intellectual challenges.  I wish , as the father of a son with severe autism disorder and profound (Read more…) . . . → Read More: Facing Autism in New Brunswick: New Brunswick’s Extreme Inclusion Fantasy Harms Some Children With Severe Autism Challenges