Andy Scott called for a REAL National Autism Strategy that would ensure treatment for autism 12 years ago, Munson, Thibeault, and Stoffer have continued the fight tirelessy. Will October 19 bring Canadians a government prepared to make it happen? Some good work has been done during this current election campaign in drawing politicians attention to the need for a REAL National Autism Strategy. The Medicare for Autism Now’s 1 in 58 campaign has produced considerable discussion in a number of selected ridings. In Saskatchewan Shannon Hill and the PAAT group have engaged federal and political politicians. Hopefully the government elected (Read more…)
The picture above was taken a few days ago. I believe anyone can look at the picture and see the happiness on my 19 year old severely autistic son Conor’s face. What is truly remarkable is that his happiness has been a constant feature of his life despite the very severe challenges that he faces with severe autism, intellectual disability (like 50% of persons with autism), epileptic seizures, life threatening adverse reactions to some seizure meds and self injurious behaviors. What is perhaps even more remarkable is that Conor’s happiness has been a constant in his life even without (Read more…)
Fredericton Liberal Candidate Matt DeCourcey
Email received October 2, 2015 from Fredericton Liberal Candidate Matt DeCourcey stating Liberal Party supports creation of a National Autism Strategy addressing ABA and IBI access and coverage under Medicare: Hi Harold, Thank you for the email. I apologize for the delay in my response. I want to let you know that the Liberal Party and I fully support the creation of a national autism strategy. Our party recognizes that in certain provinces, autism treatments, including ABA and IBI are covered under provincial Medicare programs and are more readily available in other provinces. Health care (Read more…) . . . → Read More: Facing Autism in New Brunswick: Fredericton Liberal Matt DeCourcey: Liberal Party Committed to A National Autism Strategy Addressing Access to ABA/IBI
My son Conor, now 19 1/2 years old, stimming, a recognized feature of autism spectrum disorder, in this older picture. Conor, a couple of years ago, at the Chalmers Hospital intensive care unit, where he was being treated for rhabdomyolisis, a seriious adverse reaction to his epilepsy seizure meds at that time. As the father of a son with autism spectrum disorder, intellectuall disability and epilepsy I have asked myself is these conditions are in fact related. It has been my non evidence based belief, based solely on observing, caring for and loving my son for almost 20 years (Read more…) . . . → Read More: Facing Autism in New Brunswick: Research Review: Autism Spectrum Disorder and Epilepsy: Two Sides of the Same Coin?
Conor has been on a good run for the previous 7-10 days and today was pretty much the same until 6:15 this evening when we heard a loud thump uupstairs. His mom ran upstairs and screamed for help when she saw him convulsing on the floor with thick fluids oozing out of his mouth. We had to keep him on his side with his head away from any corners or hard objects. This was Conor’s 4th grand mal seizure since Christmas. Conor’s convulsions did not appear to last too long compared to some previous seizures .. approximately 2 minutes. (Read more…)
Vancouver, BC – Today, the Medicare for autism Now! Society (“MFAN”), a non-partisan, not-for-profit, all volunteer organization, announced the launch of its nation-wide One in 68 campaign. “We will be holding a Campaign Kick-off this Saturday, June 27th, at Douglas College, New Westminster, between 10:00 am and 2:00 pm,” said MFAN director and campaign manager, Dr. Sherri Brown, “It will outline the rationale for our initiative and lay-out our action and advocacy agenda leading to the federal election on October 19th, less than four months away.” The MFAN campaign takes its name from the (Read more…) . . . → Read More: Facing Autism in New Brunswick: Medicare for Autism NOW! Campaign Kick Off Today!
National Autism Center Completes Most Comprehensive Review of Autism Interventions Identifies Established Interventions for Children, Adolescents, and Adults on the Autism Spectrum National Autism Center Press Release 0.1 Randolph, Mass. – Researchers at the National Autism Center at May Institute today released the results of the largest systematic review to date of interventions for autism spectrum disorder (ASD). Their findings identify 14 “Established Interventions” for children and adolescents that have the most research support, produce beneficial outcomes, and are known to be effective, and one Established Intervention for adults on the autism spectrum. “The National Standards Project is an (Read more…) . . . → Read More: Facing Autism in New Brunswick: May Institute National Autism Center Review: Applied Behavior Analysis The One Intervention Determined To Be Effective For Adults With Autism
Meeting of Senior Department of Education Officials With Gordon Porter And Other Advocates of Extreme Everyone In the Mainstream Classroom Inclusion June 20, 21, 2012Information from CANADALAND web site.
L: Yude M. Henteleff, C.M., Q.C., L.L.D. (Hon.) R: Harold L. Doherty at the Atlantic Human Rights Centre Inclusion Conference Crowne Plaza Fredericton-Lord Beaverbrook, June 14, 15, 2012 Mr. Henteleff presented, a paper advocating for a range of learning placement optionsin order to ensure meaningful inclusion: MEANINGFUL ACCESS, INCLUDING THE PROVISION OF A WIDE RANGE OF PLACEMENTS, AS AN INTEGRAL PART (Read more…) . . . → Read More: Facing Autism in New Brunswick: Larry’s Gulch Inclusive Education Review June 21, 22, 2012
MIT Technology Review: John Elder Robison is a professor at the College of William & Mary and the author of Look Me in the Eye.
John Elder Robison is a former “free ranging “Aspie”, a successful businessman, writer and now apparently a professor as indicated in the MIT Technology Review article Fixing Autism Research We need to come to grips with what autism really is. I met Mr Robison briefly at the IMFAR conference in Toronto a couple of years ago. It is not clear in what sense he suffers from a DSM5 ASD clinically significant (Read more…) . . . → Read More: Facing Autism in New Brunswick: "Professor" John Elder Robison’s Limited Understanding of Autism and Autism Research
The DSM5 is certainly open to criticism; particularly in its combining of the pervasive developmental disorders into one Autism Spectrum Disorder ignoring the very large numbers of persons with DSM-IV Autistic Disorder who also suffer from Intellectual Disability. One point which did make sense in the Autism Spectrum Disorder diagnostic criteria though is the one that is routinely ignored by those who glorify autism disorders … Criterion D (underlining added): Diagnostic Criteria for 299.00 Autism Spectrum Disorder D.Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning. The subscribers to the irrational view that (Read more…) . . . → Read More: Facing Autism in New Brunswick: DSM5 ASD Criterion D: No Clinically Signifcant Impairment in Current Functioning = No Autism
The Seinfeld-Descartes Autism Diagnostic Tool: I Think I Am Autistic Therefore I Am Autistic
Many, especially many with very, very high functioning autism diagnoses have embraced Jerry Seinfeld’s new test for autism “conditions” one that the great comic borrowed from philosopher Rene Descartes: ”I think I am autistic, therefore I am autistic“. With the Seinfeld-Descartes diagnostic tool it is no longer necessary for those who want to join the truly amazing autism club to obtain one of those pesky medical diagnoses. Nor will it be necessary to demonstrate the presence of that nasty Criterion D in the DSM5 (Read more…)
(Grainy) Composite Photo 0f Jerry Seinfeld by Harold L Doherty, Moncton Coliseum, February 2012, 2 Years Before His Revelation That He “Might” Be “On “The Autism Spectrum” Picture by Harold L Doherty of My Son Conor Doherty On His 2nd Birthday, The Day Before His Autism Disorder Diagnosis Was Received After Six Months Of Tests And Pediatric Observation Jerry Seinfeld has revealed, at age 60, that he thinks he might be “on the autism spectrum”. He may be right, I don’t know and won’t know unless he seeks a professional assessment and makes the result of that assessment known (Read more…)
October, for what its worth, is Autism Awareness Month in Canada. You will probably see performances by persons with Asperger’s or high functioning Autism. There will be wonderful success stories and accomplishments shared to give parents hope, in many cases false hope, about their child’s future. There will be little mention, if any, of the persons who suffer from severe, low functioning Autism Spectrum Disorder. There will probably be little about such serious issues as sensory challenges, self injurious behaviors, meltdown, wandering resulting in injury and death, seizures and other challenges common to persons with autism (Read more…)
September 25, 2014
Premier Elect Brian GallantProvince of New Brunswick
Dear Mr. Gallant:
”We need an enhanced group home system throughout the province in which homes would be linked directly to a major centre that could provide ongoing training, leadership and supervision. That major centre could also provide services for those who are mildly affected as well as permanent residential care and treatment for the most severely affected.” 2010, Professor Emeritus (Psychology), Clinical Psychologist, Paul McDonnell.
The people of New Brunswick, including those with autism disorders and their families, have entrusted you with the great (Read more…) . . . → Read More: Facing Autism in New Brunswick: Dear Premier Elect Gallant: Please Develop the Adult Autism Care System NB Has Needed for So Long
The picture above is from Conor’s 2nd Birthday on February 2, 1998. The next day we received his autism disorder diagnosis, described initially as Pervasive Developmental Disorder Not Otherwise Specified, six months after various tests and six months after requesting medical attention because we did not understand his lack of development and we were concerned. Shortly thereafter as his deficits became more obvious and pronounced the diagnois was changed to Autistic Disorder now part of the DSM-5 Autism Spectrum Disorder. An age 2 diagnosis was rare in those days. Conor at 3. Over the first year, post (Read more…) . . . → Read More: Facing Autism in New Brunswick: I Am Hoping for NDP Voices in the NB Legislature to Help Families Advocate for An Adult Autism Care Facility
Associated Morbidity and Mortality
Health care utilization and costs are substantially higher for children and adolescents with ASDs compared with children without ASDs,89–91 and available data suggest that mortality is increased as well (standardized mortality ratio: 2.4–2.6).92,93 The increased mortality in ASDs is thought to be largely, but not completely, accounted for by the increased mortality associated with mental retardation and epilepsy. . . . → Read More: Facing Autism in New Brunswick: Time To Divide The Heterogeneous DSM-5 Autism Spectrum Disorder and Free the Invisible, Severely Autistic From Oppression
“People with Autism Spectrum Disorder may be overly dependent on routines, highly sensitive to changes in their environment, or intensely focused on inappropriate items. … the symptoms of people with ASD will fall on a continuum, with some individuals showing mild symptoms and others having much more severe symptoms“ American Psychiatric Association, Autism Spectrum Disorder Fact Sheet [Underlining added for emphasis - HLD] Mistie Delorey is a single mother currently residing in a property of the Fredericton Non-Profit Housing Corporation. Her son with severe autism will turn 7 two days from now, on July 31, (Read more…) . . . → Read More: Facing Autism in New Brunswick: Mother and Severely Autistic Son Evicted by Fredericton Non-Profit Housing Corporation Will Be Homeless Friday, August 1
NB Premier David Alward whose government has Produced a New Autism Intervention Policy with No Provision for Funding Training of Autism Support Workers treating New Brunswick’s autistic pre-schoolers. The next time you sit in a dentist’s chair will you have to wonder whether the dental assistant or even the dentist is properly trained? Will you have to ask whether your child’s teacher has a university education? The answer to both of these questions is obviously no. Medical and education workers generally are required to be properly trained. Nor do we want untrained “mechanics” servicing our cars. In New Brunswick (Read more…)
CNN which loves to portray high functioning autism and Aspergers as autism has done it again with a feature called “Autism Is Growing Up” which … of course … features only adult persons with High Functioning Autism and Aspergers. In fact CNN and its accomplice Francesca Happé present 7 full stories of persons with high functioning autism and Aspergers. In addition an 8th adult with Aspergers, Canadian Zoey Roberts, is featured on the opening page of this creative portrayal of Aspergers as autism telling people that “autism is not a tragedy” which of course it isn’t if you happen to exist on (Read more…)
There are a number of very high functioning persons claiming to be autistic or claiming to have a “syndrome” or “different way of thinking”. Autism is a difference not a disorder they cry out in anger against all efforts to find treatments and cures, such efforts usually led by parents and family members of severely autistic children and adults. The great mystery to me is why they embrace the term “autism” to describe their “difference” but reject the label as representative of a medical diagnosis or disorder. In my humble opinion it is very unfortunate that both the DSM-5 and (Read more…)
Autism is not a person. Autism is defined by some authorities as a disorder, by others as “autisms” or a varied group of complex heterogeneous disorders and by still other authorities as a group of symptoms which together have come to be referred to as “autism”. Autism is not, however, a person and because of that indisputable fact it can not sign petitions lobbying government institutions to abolish legislation passed to fight autism. Autism can not oppose the rights of actual persons to be cured or treated for autism and can not oppose the rights of parents and other (Read more…)
The belief that there is a single defining autism spectrum disorder brain dysfunction must be relinquished. – Waterhouse and Gillberg, Why Autism Must Be Taken Apart I am not going to offer too much comment on the article by Lynn Waterhouse and Christopher Gillberg itself which, as the title indicates, argues that autism must be taken apart, at least for research purposes. I have not yet purchased or read the article. The abstract speaks very clearly and even I, as an ignorant, hysterical, misguided parent of a son WITH severe autism disorder, intellectual disability and epileptic seizures can understand. Waterhouse (Read more…)
The Simon Foundation Autism Research Initiative, SFARI, continues to represent studies involving only high functioning autistic participants to the public as “autism” studies. In the Children with autism have trouble recalling memories article posted January 3, 2014 SFARI reports as an “autism” study a study which excluded as participants the 50% of those with an Autism Spectrum Disorder who also have an intell5ectual disability (World Health Organization estimate, September 2013):
“Children with autism have trouble recalling memories
Laura Geggel 3 January 2014 Children with autism struggle to remember details of events from their own lives, reports (Read more…) . . . → Read More: Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research
Photo by Harold L Doherty Edward Ritvo-Susan Swedo Shootout at the IMFAR Corral, Sheraton, Toronto, May 18, 2012
The year 2013 will be remembered as the year the simplified DSM-5 Autism Spectrum Disorder definition was imposed on a very complex and diverse group of disorders and/or symptoms. Catherine Lord, Susan Swedo and other members of the DSM-5 committee responsible for the definition change simply ignored criticisms of their proposals and pushed ahead because, in their minds, they know better than their critics.
It would be one thing if the DSM5 Autism Spectrum Disorder critics were simply parents like me. (Read more…) . . . → Read More: Facing Autism in New Brunswick: 2013: The Year Of Autism’s Grand Error, The DSM5 Autism Spectrum Disorder
Julia Rendleman/Post-Gazette Jeffrey Maloney, 19, is comforted by his mother, Lisa, during a family outing at the Pittsburgh Zoo & PPG Aquarium. In a rarity in the mainstream media the Pittsburgh Post-Gazette published an honest, informed article by Mark Roth and Julia Rendleman on the challenges faced by a family with two children on the autism spectrum, one diagnosed as PDD and the other an adult son with severe autism disorder and the impact on the family, the Maloney family, of caring for them. The article was the first in a 4 part series on autism disorders run by the Pittsburgh Post-Gazette (Read more…) . . . → Read More: Facing Autism in New Brunswick: Autism Media Rarity: Pittsburgh Post-Gazette Autism Series Includes Severe Autism And Family Impact