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Facing Autism in New Brunswick: Surprise! A Meaningful Autism Disorder Study Provides Evidence of Autism’s Harsh Realities

Autism is a disorder which, far beyond its core diagnostic criteria, brings with it higher than average medical conditions and psychiatric illnesses.   The health status of adults on the autism spectrum study confirms the harsh realities of autism disorders and should not be ignored or lightly dismissed by academics, mainstream media or professional “self” advocates who, despite their very high functioning levels, insist on burying the harsh realities of the severely autistic, like my son, in the mounds of autism ignorance they dump on the public landscape. As the study indicates autism disorders mean significantly higher than average psychiatric illnesses and medical conditions.  Not much joy to be found in those realities.This study though should be helpful in bringing a much needed dose of autism realities to the  public understanding of autism disorders and the harsh realities that accompany them.

The health status of adults on the autism spectrum

  1. Lisa A Croen1
  2. Ousseny Zerbo1
  3. Yinge Qian1
  4. Maria L Massolo1
  5. Steve Rich2
  6. Stephen Sidney1
  7. Clarissa Kripke3

  1. 1Kaiser Permanente Northern California—Oakland, USA

  2. 2Kaiser Permanente Northern California—Santa Rosa, USA

  3. 3University of California, San Francisco, USA
  1. Lisa A Croen, Division of Research, Kaiser Permanente Northern California—Oakland, 2000 Broadway, Oakland, CA 94612, USA. Email: Lisa.A.Croen@kp.org

Abstract

Compared to the general pediatric population, children with autism have higher rates of co-occurring medical and psychiatric illnesses, yet very little is known about the general health status of adults with autism. The objective of this study was to describe the frequency of psychiatric and medical conditions among a large, diverse, insured population of adults with autism in the United States. Participants were adult members of Kaiser Permanente Northern California enrolled from 2008 to 2012. Autism spectrum disorder cases (N = 1507) were adults with autism spectrum disorder diagnoses (International Classification of Diseases-9-Clinical Modification codes 299.0, 299.8, 299.9) recorded in medical records on at least two separate occasions. Controls (N = 15,070) were adults without any autism spectrum disorder diagnoses sampled at a 10:1 ratio and frequency matched to cases on sex and age. Adults with autism had significantly increased rates of all major psychiatric disorders including depression, anxiety, bipolar disorder, obsessive–compulsive disorder, schizophrenia, and suicide attempts. Nearly all medical conditions were significantly more common in adults with autism, including immune conditions, gastrointestinal and sleep disorders, seizure, obesity, dyslipidemia, hypertension, and diabetes. Rarer conditions, such as stroke and Parkinson’s disease, were also significantly more common among adults with autism. Future research is needed to understand the social, healthcare access, and biological factors underlying these observations.

. . . → Read More: Facing Autism in New Brunswick: Surprise! A Meaningful Autism Disorder Study Provides Evidence of Autism’s Harsh Realities

Facing Autism in New Brunswick: "Professor" John Elder Robison’s Limited Understanding of Autism and Autism Research

MIT Technology Review:  John Elder Robison is a professor at the  College of William & Mary and the author of Look Me in the Eye.

John Elder Robison is a former “free ranging “Aspie”, a successful businessman, writer and now apparently a professor as indicated in the MIT Technology Review article Fixing Autism Research We need . . . → Read More: Facing Autism in New Brunswick: "Professor" John Elder Robison’s Limited Understanding of Autism and Autism Research

Facing Autism in New Brunswick: It’s Still "Gotta Be Genetic" as Autism Genetic Research Re-Invents Itself Yet Again

   National Institute of Environmental Health Sciences:  Gene-Environment Interaction: Nearly all diseases result from a complex interaction between an individual’s genetic make-up and the environmental agents that he or she is exposed to. Genetic research has maintained a near monopoly over autism causation research dollars for many years and with that financial monopoly the . . . → Read More: Facing Autism in New Brunswick: It’s Still "Gotta Be Genetic" as Autism Genetic Research Re-Invents Itself Yet Again

Facing Autism in New Brunswick: Early Autism Identification Breakthrough? That’s Funny, Conor Was Diagnosed 16 Years Ago At Age 2!

Above: Conor last month leaving school with his Mom on his 18th birthday  Below: Conor 16 years ago on his 2nd birthday.  The next day he received  his autism diagnosis. 

Our son Conor recently turned 18.  He has an autistic disorder diagnosis.  He was originally diagnosed the day after his 2nd birthday.   . . . → Read More: Facing Autism in New Brunswick: Early Autism Identification Breakthrough? That’s Funny, Conor Was Diagnosed 16 Years Ago At Age 2!

Facing Autism in New Brunswick: Research Into Early Autism Interventions – La Trobe University Olga Tennison Autism Research Centre (OTARC)

Another excellent, thorough discussion from LaTrobe University’s  Olga Tennison Autism Research Centre (OTARC) focusing this time on early intervention research. 

  “Published on 16 Mar 2014 Dr Kristelle Hudry, Dr Giacomo Vivanti, Dr John McEachin discuss the development and trends of research into early intervention. Topics covered include the neurodiversity v intervention debate, . . . → Read More: Facing Autism in New Brunswick: Research Into Early Autism Interventions – La Trobe University Olga Tennison Autism Research Centre (OTARC)

Facing Autism in New Brunswick: Parent Observation Based Study: Children With Autism Disorders as Early as 12 Months Display Highly Elevated Range of Repetitive Behaviors

Some study results that don’t surprise me given the use of parent observation, the most, and perhaps only,  reliable source of information concerning autism symptoms during children’s infancy: Longitudinal patterns of repetitive behavior in toddlers with autism Journal of Child Psychology and Psychiatry, 

“Conclusions “These findings suggest that as early as 12 months . . . → Read More: Facing Autism in New Brunswick: Parent Observation Based Study: Children With Autism Disorders as Early as 12 Months Display Highly Elevated Range of Repetitive Behaviors

Facing Autism in New Brunswick: 16 Years After Conor’s Autism Diagnosis: Lots of Conor Joy But No Progress in Autism Research

Yesterday was Conor’s 18th birthday. Today is exactly 16 years after his autism diagnosis, received the day after his second birthday and after several months of testing and observation. Conor, now a young man, is till the happy boy that brings joy to his Mom and Dad, along with many serious challenges, challenges that restrict . . . → Read More: Facing Autism in New Brunswick: 16 Years After Conor’s Autism Diagnosis: Lots of Conor Joy But No Progress in Autism Research

Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research

The Simon Foundation Autism Research Initiative, SFARI, continues to represent studies involving only high functioning autistic participants to the public as “autism” studies.  In the Children with autism have trouble recalling memories article posted January 3, 2014 SFARI reports as an “autism” study a study which excluded as participants the 50% of those with . . . → Read More: Facing Autism in New Brunswick: SFARI Continues Misrepresenting High Functioning Autism Only Research As "Autism" Research

Facing Autism in New Brunswick: Intellectual Dishonesty: Autism Disorders Misrepresentation Via High Functioning Autism Only Research

In the picture above SFARI presents news of two “autism” studies which purport to find that brains of persons with “autism” are overly connected as compared to those in control groups. In fact both studies intentionally and expressly excluded persons with autism and intellectual disability, approximately 50% of those with autism spectrum disorders . . . → Read More: Facing Autism in New Brunswick: Intellectual Dishonesty: Autism Disorders Misrepresentation Via High Functioning Autism Only Research

Facing Autism in New Brunswick: DSM5 Autism Spectrum Disorder Has Arrived: Are Ari Ne’eman and John Elder Robison Still Autistic?

The DSM5 has been released and is now beginning to impact the world of autism.  Most discussion of the DSM5’s New Autism Spectrum Disorder has ignored the effect of the language of mandatory criterion A which will act to exclude from autism diagnosis those with severe intellectual disability. Most of the discussion has . . . → Read More: Facing Autism in New Brunswick: DSM5 Autism Spectrum Disorder Has Arrived: Are Ari Ne’eman and John Elder Robison Still Autistic?

Facing Autism Symptoms in New Brunswick: Conor’s Autism Diagnosis 15 Years Ago Today

Conor, 2nd Birthday, the day before he is diagnosed with  PDD-NOS (subsequently changed to Autistic Disorder)

Yesterday was Conor’s 17th birthday.  Today is exactly 15 years since he was diagnosed with an autism disorder, PDD-NOS, the day after his second birthday shown in the pictures above.  Shortly afterward he was . . . → Read More: Facing Autism Symptoms in New Brunswick: Conor’s Autism Diagnosis 15 Years Ago Today

Facing Autism Disorders in New Brunswick: Questioning Answers – An Excellent Autism Research Blog

My favorite blog dedicated to autism research is Questioning Answers, by researcher Paul Whiteley,  and I  recommend it for anyone interested in the subject.   Whiteley  presents autism research information in a manner that can be digested by this humble autism dad and is not condescending.  The content is broad, balanced and clear . . . → Read More: Facing Autism Disorders in New Brunswick: Questioning Answers – An Excellent Autism Research Blog

Facing Autism Disorders in New Brunswick: Autism Research Community’s Failing Grades: Vocational Interventions Research

“In the end, the researchers found only five studies that focused on vocational interventions. While this handful of studies looked at certain on-the-job programs designed to support young adults with autism and suggest these “interventions” can improve quality of life and reduce symptoms of autism, the study authors concluded, “all studies were of poor . . . → Read More: Facing Autism Disorders in New Brunswick: Autism Research Community’s Failing Grades: Vocational Interventions Research

Facing Autism Disorders in New Brunswick: Guilty! Autism Blame from Cold Moms to Old Dads

Breaking Science News: Guilty! Old Dads convicted of causing children’s autism disorders, all charges dropped against environmental toxins! Once upon a time the medical community accepted without critical analysis the speculation that aloof, cold “refrigerator” moms caused their children’s autism disorders. Eventually that so called theory was exposed as a medical establishment fraud, a . . . → Read More: Facing Autism Disorders in New Brunswick: Guilty! Autism Blame from Cold Moms to Old Dads

Facing Autism Disorders in New Brunswick: 12 Years Later: Environmental Causes of Autism Still Unexplored

“The Environment as an etiologic factor in autism: a new direction for research”  by EA London was published online by ehp, Environmental Health Perspectives, in 2000. Today, 12 years later, it remains the direction not taken as “autism research” continues down the road of genetic obsession and largely ignores environmental autism research. Although public . . . → Read More: Facing Autism Disorders in New Brunswick: 12 Years Later: Environmental Causes of Autism Still Unexplored

Facing Autism Disorders in New Brunswick: Autism Reality Check: Where Are The IACC Results?

I have previously written about the importance of the IACC and in a 2009 blog comment expressly thanked the IACC for its role in advancing autism research.  With the passage of 3 years though I have  become a less enthusiastic IACC booster.  Both the Canary Party and the Elizabeth Birt Center for Autism Law and . . . → Read More: Facing Autism Disorders in New Brunswick: Autism Reality Check: Where Are The IACC Results?

Facing Autism in New Brunswick: Autism Researcher Bias and the Targeted Exclusion of Intellectually Disabled in the DSM-5 Autism Do-Over

Autism researcher bias exists and its effect, when the DSM-5 takes effect in 2013,  will further the redefinition of autism as social awkwardness and the exclusion from the autism spectrum of persons with severe intellectual disabilities.  

David Kupfer, M.D., chair of the DSM-5 Task Force,  has stated that “the proposed ASD criteria are backed . . . → Read More: Facing Autism in New Brunswick: Autism Researcher Bias and the Targeted Exclusion of Intellectually Disabled in the DSM-5 Autism Do-Over

Facing Autism in New Brunswick: Conor’s Autism Reality: From Joy To Self Injurious Behavior In A Flash

I have never accepted, and have in fact been openly contemptuous of, the view that autism is a joy, an alternative, even superior way of thinking.   My son’s autistic disorder diagnosis accurately describes autism as it really is …  a disorder, one that  impairs the lives of those, like my son Conor, . . . → Read More: Facing Autism in New Brunswick: Conor’s Autism Reality: From Joy To Self Injurious Behavior In A Flash

Facing Autism in New Brunswick: Walking With Conor After IMFAR Autism Research Convention

IMFAR was quite an experience.  Very intense. Learned lots, saw lots and met some interesting people. Spent a lot more time indoors then I usually would at this time of year though.  I was glad to get back to Fredericton and get outdoors  walking with Conor today.  And we did lots of walking. . . . → Read More: Facing Autism in New Brunswick: Walking With Conor After IMFAR Autism Research Convention

Facing Autism in New Brunswick: Autism, Intellectual Disability & Environment: Children of Immigrants in Sweden At Greater Risk of Developing Autism with Intellectual Disability

Swedish Flag by Matti Mattila  A major Swedish study offers uncomfortable news to the DSM-5 team trying to pretend there is no relationship between autism and the intellectual disability which affects the vast majority of those with classic Autistic Disorder. It will also be disconcerting  to those who devoutly believe that autism is 100% . . . → Read More: Facing Autism in New Brunswick: Autism, Intellectual Disability & Environment: Children of Immigrants in Sweden At Greater Risk of Developing Autism with Intellectual Disability

Facing Autism in New Brunswick: 2011 Autism Research Game Changer: California Autism Twins Study (CATS) And Gene Environment Interaction

Joachim Hallmayer MD, Stanford University Following is the press release I received setting out what Autism Speaks considers to be the top 10 autism research achievements of 2011.  Personally I do not think every one of these projects should be on a list of top 10 autism research achievements but this is the Autism . . . → Read More: Facing Autism in New Brunswick: 2011 Autism Research Game Changer: California Autism Twins Study (CATS) And Gene Environment Interaction

Facing Autism in New Brunswick: Autism Research Studies Exclude Low Functioning Autistic Participants

Discrimination against persons with low functioning autism disorders takes many forms. It is particularly rampant in the autism research world where studies purporting to inform us about autism almost invariably exclude low functioning autistic participants. Conclusions are again being drawn about persons with autism spectrum disorders based on a study which excluded low functioning autistic . . . → Read More: Facing Autism in New Brunswick: Autism Research Studies Exclude Low Functioning Autistic Participants

Facing Autism in New Brunswick: Parents Annoyed with Useless, Trivial Cambridge Autism Research

Is Cambridge University Professor Simon Baron-Cohen’s latest “autism research” useless?  Autism Eye reports that Autism Eye magazine editor Gillian Loughran “has been inundated with phone calls from parents expressing their annoyance at what they see as the latest trivia to emerge from Cambridge.“ The impugned research examined the professions of parents of autistic . . . → Read More: Facing Autism in New Brunswick: Parents Annoyed with Useless, Trivial Cambridge Autism Research

Facing Autism in New Brunswick: Return of the Bad Parents Cause Autism Nightmare Monster

“DR. GABOR MATÉ: Well, the situation with fathers is, is that increasingly—there was a study recently that showed an increasing number of men are having postpartum depression, as well. And the main role of the father, of course, would be to suppor… . . . → Read More: Facing Autism in New Brunswick: Return of the Bad Parents Cause Autism Nightmare Monster

Facing Autism in New Brunswick: President Obama Continues Autism Hope, Signs Combating Autism Reauthorization Act Into Law

Autism hope for the future lies in autism research and the US leads the world in autism research.   I can not say it often enough. Thank you America. Thank you President Obama.   . . . → Read More: Facing Autism in New Brunswick: President Obama Continues Autism Hope, Signs Combating Autism Reauthorization Act Into Law