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Facing Autism in New Brunswick: Surprise! A Meaningful Autism Disorder Study Provides Evidence of Autism’s Harsh Realities

Autism is a disorder which, far beyond its core diagnostic criteria, brings with it higher than average medical conditions and psychiatric illnesses.   The health status of adults on the autism spectrum study confirms the harsh realities of autism disorders and should not be ignored or lightly dismissed by academics, mainstream media or professional “self” advocates who, despite their very high functioning levels, insist on burying the harsh realities of the severely autistic, like my son, in the mounds of autism ignorance they dump on the public landscape. As the study indicates autism disorders mean significantly higher than average psychiatric illnesses and medical conditions.  Not much joy to be found in those realities.This study though should be helpful in bringing a much needed dose of autism realities to the  public understanding of autism disorders and the harsh realities that accompany them.

The health status of adults on the autism spectrum

  1. Lisa A Croen1
  2. Ousseny Zerbo1
  3. Yinge Qian1
  4. Maria L Massolo1
  5. Steve Rich2
  6. Stephen Sidney1
  7. Clarissa Kripke3

  1. 1Kaiser Permanente Northern California—Oakland, USA

  2. 2Kaiser Permanente Northern California—Santa Rosa, USA

  3. 3University of California, San Francisco, USA
  1. Lisa A Croen, Division of Research, Kaiser Permanente Northern California—Oakland, 2000 Broadway, Oakland, CA 94612, USA. Email: Lisa.A.Croen@kp.org

Abstract

Compared to the general pediatric population, children with autism have higher rates of co-occurring medical and psychiatric illnesses, yet very little is known about the general health status of adults with autism. The objective of this study was to describe the frequency of psychiatric and medical conditions among a large, diverse, insured population of adults with autism in the United States. Participants were adult members of Kaiser Permanente Northern California enrolled from 2008 to 2012. Autism spectrum disorder cases (N = 1507) were adults with autism spectrum disorder diagnoses (International Classification of Diseases-9-Clinical Modification codes 299.0, 299.8, 299.9) recorded in medical records on at least two separate occasions. Controls (N = 15,070) were adults without any autism spectrum disorder diagnoses sampled at a 10:1 ratio and frequency matched to cases on sex and age. Adults with autism had significantly increased rates of all major psychiatric disorders including depression, anxiety, bipolar disorder, obsessive–compulsive disorder, schizophrenia, and suicide attempts. Nearly all medical conditions were significantly more common in adults with autism, including immune conditions, gastrointestinal and sleep disorders, seizure, obesity, dyslipidemia, hypertension, and diabetes. Rarer conditions, such as stroke and Parkinson’s disease, were also significantly more common among adults with autism. Future research is needed to understand the social, healthcare access, and biological factors underlying these observations.

. . . → Read More: Facing Autism in New Brunswick: Surprise! A Meaningful Autism Disorder Study Provides Evidence of Autism’s Harsh Realities

Facing Autism in New Brunswick: Sebastien’s Sad and Scary Adult Autism Reality in Moncton, New Brunswick

When autistic persons in New Brunswick turn 21 particularly severely autistic adults services many services will no longer be available. For severely autistic adults adulthood can be bleak, sad and scary. This is Sebastien’s story, a severely autistic 21 year old from Moncton, New Brunswick … as told by his obviously heartbroken and scared mother . . . → Read More: Facing Autism in New Brunswick: Sebastien’s Sad and Scary Adult Autism Reality in Moncton, New Brunswick

Facing Autism in New Brunswick: Severe Autism With Intellectual Disability And Epilepsy Can Be Tough But It’s Still a Wonderful World

My Son Conor Wore The Blue on World Autism Awareness Day I understand some of the criticisms of the day and of thinking that wearing a color in itself creates autism awareness but as long as people  raise real autism awareness of the challenges of autism disorders and  the related  conditions from which . . . → Read More: Facing Autism in New Brunswick: Severe Autism With Intellectual Disability And Epilepsy Can Be Tough But It’s Still a Wonderful World

Facing Autism in New Brunswick: Joy of Conor 2014

I will not pretend, I will never pretend, that autism is just a different way of thinking.  Heather and I love our son too much to lie to the world about the nature of his autism realities, his severe autism, intellectual disability and epileptic seizures.  Like many parents of autistic children I believe it . . . → Read More: Facing Autism in New Brunswick: Joy of Conor 2014

Facing Autism in New Brunswick: New Jersey Dad: "Reality Of Autism Is Often Very Grim"

I chose the name of my email account “AutismRealityNB@gmail.com” because, from my perspective, the harsh realities of autism disorders are usually ignored or worse,  intentionally misrepresented, by the mainstream media, autism awareness organizations, some high functioning autism “self”advocates and even some parents and autism professionals.  An online friend of mine who shares similar . . . → Read More: Facing Autism in New Brunswick: New Jersey Dad: "Reality Of Autism Is Often Very Grim"

Facing Autism in New Brunswick: Canada’s Autism Awareness Month? Not Much Awareness Going On … Once Again

October, for what its worth, is Autism Awareness Month in Canada.   You will probably see performances by persons with Asperger’s or high functioning Autism.  There will be wonderful success stories and accomplishments shared to give parents hope, in many cases false hope, about their child’s future.  There will be little mention, if any, of . . . → Read More: Facing Autism in New Brunswick: Canada’s Autism Awareness Month? Not Much Awareness Going On … Once Again

Facing Autism in New Brunswick: Joel Rubinoff’s Angry, Ill Informed, Misleading Autism Rhetoric

Conor Doherty on World Autism Awareness Day 2014,  as I tried to take a “selfie” of the two of us wearing blue, gave his old Dad an unexpected hug.  As in this pic, Conor brings us great joy but his autism is a disorder  which restricts his life and causes him harm.  Joel Rubinoff father of . . . → Read More: Facing Autism in New Brunswick: Joel Rubinoff’s Angry, Ill Informed, Misleading Autism Rhetoric

Facing Autism in New Brunswick: Autism Reality Check: Autism Is Not A Person – It Is A Disorder, A Group of Disorders or A Group of Symptoms

Autism is not a person.   Autism is defined by some authorities as a disorder, by others as “autisms” or a varied group of complex heterogeneous disorders and by still other authorities as a group of symptoms which together have come to be referred to as “autism”.  Autism is not, however, a person . . . → Read More: Facing Autism in New Brunswick: Autism Reality Check: Autism Is Not A Person – It Is A Disorder, A Group of Disorders or A Group of Symptoms

Facing Autism in New Brunswick: Autism Parents Are Not Unbreakable

   The allegedly UNBREAKABLE blade of my window ice scraper snapped off under the strain of several days of heavy ice scraping in this December’s cold and snowy Canadian winter weather. In fairness to the manufacturers and distributors of the “Unbreakable” ice scraper blade I have used it well past the 3 year limited . . . → Read More: Facing Autism in New Brunswick: Autism Parents Are Not Unbreakable

Facing Autism in New Brunswick: THIS Is Autism, Conor’s Autism Reality, Self Injurious Behavior

Suzanne Wright’s recent honest and courageous statements in support of a National Autism Plan in the United States has attracted the wrath of Neurodiversity cult members and they will not relent. All the usual suspects  have been voicing their irrational outrage Emily Willingham, Shannon des Roches Rosa, John Robison etc.  In their modern . . . → Read More: Facing Autism in New Brunswick: THIS Is Autism, Conor’s Autism Reality, Self Injurious Behavior

Facing Autism in New Brunswick: An Excellent Week For Autism Advocacy! Suzanne Wright Speaks Out and John Elder Robison Resigns

Thank You Suzanne Wright!

It was a good week for reality based autism advocacy for two reasons. First, I was very encouraged by Suzanne Wright’s very honest description of the many challenges facing persons with autism disorders and their families in Autism Speaks to Washington – A Call for Action. Second I was very . . . → Read More: Facing Autism in New Brunswick: An Excellent Week For Autism Advocacy! Suzanne Wright Speaks Out and John Elder Robison Resigns

Facing Autism in New Brunswick: Great Autism News: 15 Year Old Boy With Autism And Intellectual Disability Found Safe

As the father of a 17 year old young man with severe autism, intellectual disability and epileptic seizures I am very happy to read that 15 year old autistic boy Louis Martin was found safe in Montreal after being reported missing by his father (who also tweeted his son’s disappearance).   Wandering is a . . . → Read More: Facing Autism in New Brunswick: Great Autism News: 15 Year Old Boy With Autism And Intellectual Disability Found Safe

Facing Autism in New Brunswick: High Functioning Autism Speaks Continues Betrayal of 50% of Autism Spectrum With Intellectual Disability

Autism Speaks continues its betrayal of the 50% of persons on the autism spectrum, those with intellectual disability, those for whom  autism is a disorder not a superior way of thinking or the possible subject of a new TV comedy series or a career as a well paid “autism” advocate with “Autism“ Speaks. 

In the October . . . → Read More: Facing Autism in New Brunswick: High Functioning Autism Speaks Continues Betrayal of 50% of Autism Spectrum With Intellectual Disability

Facing Autism in New Brunswick: Severe Autism: Autism in the Shadows – Thank You Amy Mackin

“My son’s story is one of hope, not unlike the stories regularly broadcast on television, printed in magazines or making the rounds on YouTube.

Yet the autism spectrum is wide and diverse, and many who suffer from severe autism will never reach the level of functioning that my child has achieved. Although these people . . . → Read More: Facing Autism in New Brunswick: Severe Autism: Autism in the Shadows – Thank You Amy Mackin

Facing Autism in New Brunswick: Why I Chose Autism REALITY As My Social Media Name

The picture above, for those visiting my blog for the first time, is my son Conor now 17+ years old.  I love him dearly and he brings great joy into my life every day.  He is also severely autistic with severe cognitive challenges (intellectual disability) and like many with those characteristics he also suffers . . . → Read More: Facing Autism in New Brunswick: Why I Chose Autism REALITY As My Social Media Name

Facing Autism in New Brunswick: Mother Of An Autistic Son Asks Autism Speaks for Some Actual Autism Awareness

The following commentary  is from the blog Muslimah Next Door  written by Dishad Ali. It addresses an issue that I have raised several times – the lack of real autism awareness created by autism awareness events. The author’s comments at Muslimah Next Door under the title When an Autism Awareness Event is Anything . . . → Read More: Facing Autism in New Brunswick: Mother Of An Autistic Son Asks Autism Speaks for Some Actual Autism Awareness

Facing Autism in New Brunswick: Autism and Seizures: Conor’s Second Grand Mal Seizure (That We Know Of)

The pictures above were initially posted on this site on May 26, 2012, several months before Conor’s 1st known Grand Mal Seizure in November. As I posted then, external conditions were perfect and Conor was enjoying a favorite activity in a favorite location when he suddenly began hitting himself in the head. I don’t . . . → Read More: Facing Autism in New Brunswick: Autism and Seizures: Conor’s Second Grand Mal Seizure (That We Know Of)

Facing Autism in New Brunswick: CNN’s Very High Functioning Autism Awareness Efforts Misrepresent Autism Disorders

CNN’s Portrayal of Autism In the Days Surrounding WAAD 2013 Middle – Jack and John Elder Robison – High Functioning Aspergers Bottom -Trevor Pacelli High Functioning PDD-NOS (Holli Dunn Photography)

To no big surprise successful, very high functioning Asperger’s businsessman, author and family man John Elder Robison’s new book Bringing Up Cubby . . . → Read More: Facing Autism in New Brunswick: CNN’s Very High Functioning Autism Awareness Efforts Misrepresent Autism Disorders

Facing Autism in New Brunswick: Autism Speaks Reluctantly Confesses: 40% Of Persons On Autism Spectrum Have Intellectual Disability

Intellectual Disability remains the Elephant in the Autism  Living Room;no one wants to admit it’s there or to talk about it It is politically incorrect in today’s autism world to acknowledge the existence of the invisible autistics, the one’s unlike Ari Ne’eman, John Elder Robison, Alex Plank and  Michelle Dawson all of who whom have . . . → Read More: Facing Autism in New Brunswick: Autism Speaks Reluctantly Confesses: 40% Of Persons On Autism Spectrum Have Intellectual Disability

Facing Autism Symptoms in New Brunswick: World Autism Awareness Day 2014

If past is prologue very little awareness of the harsher realities of autism symptoms will be generated on this WAAD, April 2, 2013.  Next year, in 2014,  and for years thereafter, the streamlined DSM5 autism will also eliminate many on the very high functioning and low functioning ends of the autism spectrum.  It is . . . → Read More: Facing Autism Symptoms in New Brunswick: World Autism Awareness Day 2014

Facing Autism Symptoms in New Brunswick: Canada’s World Autism Awareness Day Act: Great Preamble, Zero Action

On November 1, 2012 Canada passed An Act respecting World Autism Awareness Day an Act with a great preamble which provides for absolutely no action to ensure that effective evidence based early intervention for autism would be provided to all Canadian families affected by autism spectrum disorders.   Talk, and rhetoric, is cheap.  Intervention . . . → Read More: Facing Autism Symptoms in New Brunswick: Canada’s World Autism Awareness Day Act: Great Preamble, Zero Action

Facing Autism in New Brunswick: Horrific Abuse of California Man With Severe Autism

 CBSLA photo as Shown on the NY Daily News  Shows Horrifying Abuse of Man with Severe Autism

KCBS-TV  Los Angeles “Mom Sickened” and the New York Daily News “Tantamount to Torture” report a story of horrific, torturous abuse by professional caregivers of a 31 year old autistic man with the reported mental age . . . → Read More: Facing Autism in New Brunswick: Horrific Abuse of California Man With Severe Autism

Facing Autism in New Brunswick: World Autism Awareness Day 2013 Should Include Some Autism Reality

April 2, 2013 will feature another World Autism Awareness Day around the world.  Many blue lights will shine, politicians will pose and take credit for helping advance the cause of autistic persons and their families, countless media reports will talk about the gifts of autism and television series and movies alike will feature . . . → Read More: Facing Autism in New Brunswick: World Autism Awareness Day 2013 Should Include Some Autism Reality

Facing Autism Symptoms in New Brunswick: No Meaningful Inclusion, No Community Living for NB Youth and Adults With Severe Autism Challenges

                                              Resigchouche Regional Hospital Centre

As an Autism Society New Brunswick representative I attended a meeting held at the Restigouche Regional Hospital Centre a few years ago to participate in a . . . → Read More: Facing Autism Symptoms in New Brunswick: No Meaningful Inclusion, No Community Living for NB Youth and Adults With Severe Autism Challenges

Facing Autism Symptoms in New Brunswick: The Harsh Reality End of the Autism Spectrum

If you believe IACC Neurodiversity advocates  present and past,   Ari Ne’eman and Matthew Carey,  autism is not something that should be cured.  You won’t see much about the harsher aspects of life with autism disorders if you read their writings. In their view autism is nothing more than a different way of thinking, . . . → Read More: Facing Autism Symptoms in New Brunswick: The Harsh Reality End of the Autism Spectrum