Categories

A sample text widget

Etiam pulvinar consectetur dolor sed malesuada. Ut convallis euismod dolor nec pretium. Nunc ut tristique massa.

Nam sodales mi vitae dolor ullamcorper et vulputate enim accumsan. Morbi orci magna, tincidunt vitae molestie nec, molestie at mi. Nulla nulla lorem, suscipit in posuere in, interdum non magna.

Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

I was awake at 5:30 this morning, had some breakfast, and was enjoying a mug (not a cup, a mug) of coffee when I noticed that the time was 6:05 am.  Startled I jumped up to see if everything was OK with my son Conor.  Conor suffers from severe autism disorder and epileptic . . . → Read More: Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

I was awake at 5:30 this morning, had some breakfast, and was enjoying a mug (not a cup, a mug) of coffee when I noticed that the time was 6:05 am.  Startled I jumped up to see if everything was OK with my son Conor.  Conor suffers from sever… . . . → Read More: Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

Facing Autism in New Brunswick: Canada Needs A REAL National Autism Strategy: Medicare for Autism NOW!

A Medicare for Autism Now! Rally was organized by FEAT-BC  and held in Halifax, Nova Scotia on May 26, 2007.

Shawn Murphy,  Jim Munson,  Andy Scott Former PEI MP Shawn Murhpy, New Brunswick Senator Jim Munson and the late Andy Scott a former Fredericton NB MP all advocated actively for a REAL National . . . → Read More: Facing Autism in New Brunswick: Canada Needs A REAL National Autism Strategy: Medicare for Autism NOW!

Facing Autism in New Brunswick: Canada Needs A REAL National Autism Strategy: Medicare for Autism NOW!

A Medicare for Autism Now! Rally was organized by FEAT-BC and held in Halifax, Nova Scotia on May 26, 2007.Shawn Murphy,  Jim Munson,  Andy ScottFormer PEI MP Shawn Murhpy, New Brunswick Senator Jim Munson and the late Andy Scott a forme… . . . → Read More: Facing Autism in New Brunswick: Canada Needs A REAL National Autism Strategy: Medicare for Autism NOW!

Facing Autism in New Brunswick: Canada Needa a Real National Autism Strategy: Exhibit #1 Saskatchewan

Saskatchewan is Exhibit #1 In the Case for a REAL National Autism Strategy

Canada has long needed a REAL National Autism Strategy, one which includes coverage of autism in medicare to ensure that children with autism disorders received treatment for their autism disorders regardelss of which province their  parents live in. One of the . . . → Read More: Facing Autism in New Brunswick: Canada Needa a Real National Autism Strategy: Exhibit #1 Saskatchewan

Facing Autism in New Brunswick: Canada Needa a Real National Autism Strategy: Exhibit #1 Saskatchewan


Saskatchewan is Exhibit #1 In the Case for a REAL National Autism Strategy

Canada has long needed a REAL National Autism Strategy, one which includes coverage of autism in medicare to ensure that children with autism disorders received treatment for their autism disorders regardelss of which province their  parents live in. One of the most glaring examples of the need for national autism medical coverage is in the province I once called Canada’s Autism Wasteland  province.   Since that commentary on September 2, 2007  little progress appears to have been made judging by the Global story by Amber Rockliffe: Saskatchewan families moving due to lack of autism funding.  Rockliffe reports of  Saskachewan families leaving the province to find treatment for their children’s autism disorders; treatment which is not available because of long wait lists and is not usually delivered  in sufficient hours to make a substantial difference in treating their children’s autism. 

One of those families that has already made the move is the family of Sheri Radoux:

Sheri Radoux, has moved south of the U.S. border to Minnesota. “I think the services in Saskatchewan are probably the worst, or one of the worst in Canada, “said Radoux. “We moved down to Minnesota and we got full-time therapy for all our children, paid and funded by the state.”


The Rockliffe report goes on to indicate that Saskatchewan spends half, approximately $7.5 million annually, compared to approximately $15 million, that   Manitoba, with a similar population, spends annually on autism services.
Families leaving provinces, including the province many would consider the birthplace of medicare in Canada, to seek a better life for their autistic children in jurisdictions provincial and American  where a greater value is placed on the lives and futures of autistic children.
Yes, Canada needs a REAL National Autism Strategy.


. . . → Read More: Facing Autism in New Brunswick: Canada Needa a Real National Autism Strategy: Exhibit #1 Saskatchewan

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He . . . → Read More: Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I kn… . . . → Read More: Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

Facing Autism in New Brunswick: Autism, Intellectual Disability and Seizures, When Together, Constitute ONE DISORDER

In the picture above, taken 3 years ago my son erupted in sudden self injurious behavior smashing himself violently in the head a split second after he had been on the swing at his old grade school, Nashwaaksis Memorial School; a split second after he had been very smiling and happy. I captured . . . → Read More: Facing Autism in New Brunswick: Autism, Intellectual Disability and Seizures, When Together, Constitute ONE DISORDER

Facing Autism in New Brunswick: Canada’s Autism Awareness Month Message: Autistic Children Become Autistic Adults

Autism Awareness Month: Autistic Children Become Autistic Adults October is Autism Awareness Month in Canada.  As a father of an 18 year old son with severe autism disorder, profound developmental delays (like 50% of the autism spectrum according to the World Health Organization) and seizures which also affect many with autism I can tell . . . → Read More: Facing Autism in New Brunswick: Canada’s Autism Awareness Month Message: Autistic Children Become Autistic Adults

Facing Autism in New Brunswick: Severe Autism Reality: Conor is Back from Dental Surgery AND Post Surgery Medications

After last Friday’s dental surgery, followed by nearly a week of 4x a day anti-biotics, and the occasional pain killer to deal with swelling and pain, (in addition to his regular seizure meds)  it was great to get out for a Superstore trail walk with Conor on an amazingly perfect fall day in Fredericton yesterday.  . . . → Read More: Facing Autism in New Brunswick: Severe Autism Reality: Conor is Back from Dental Surgery AND Post Surgery Medications

Facing Autism in New Brunswick: Dear Mr Alward, Cardy, Coon, Gallant: New Brunswick Still Needs A Permanent Residential Care and Treatment Centre For Severely Autistic Adults

Photo of my son Conor from a few years ago submitted to the Aquinian for an article by  then Aquinian journalism student Karissa Donkin. No progress in residential care and  treatment for severely autistic adults in New Brunswick has been made since that  article or since Conor’s autism diagnosis 16 years ago at . . . → Read More: Facing Autism in New Brunswick: Dear Mr Alward, Cardy, Coon, Gallant: New Brunswick Still Needs A Permanent Residential Care and Treatment Centre For Severely Autistic Adults

Facing Autism in New Brunswick: Conor’s 3rd Tonic Clonic (Grand Mal) Seizure

Two and a half hours ago Conor suffered his 3rd Tonic Clonic or Grand Mal seizure.  (He also suffered an episode of rhabdomyolisis, a serious adverse reaction to his previous seizure medication).  On the previous 2 seizures Conor was in a room by himself when they started, this time he was with me in the . . . → Read More: Facing Autism in New Brunswick: Conor’s 3rd Tonic Clonic (Grand Mal) Seizure

Facing Autism in New Brunswick: They Just Don’t Give A Damn: 2007 Adult Autism Care and Treatment In New Brunswick Was Abysmal – 2014 Nothing Has Changed, Still Abysmal

Following this comment is a re-posting of a comment I posted on this site 7 years ago in 2007 about the abysmal state of autism youth and adult residential care and treatment in New Brunswick, Canada. 7 years later and nothing has changed. Well, one thing has changed, a very important part of my life . . . → Read More: Facing Autism in New Brunswick: They Just Don’t Give A Damn: 2007 Adult Autism Care and Treatment In New Brunswick Was Abysmal – 2014 Nothing Has Changed, Still Abysmal

Facing Autism Symptoms in New Brunswick: Thank You Again Shawn Graham For Helping NB Children With Autism

In the pictures above Shawn Graham makes a financial commitment to helping NB’s autistic children and signs the cast of then Autism Society New Brunswick President Lila Barry.  In the bottom picture he and former Fredericton MP Andy Scott, also a strong advocate for autistic children,  participated in the grand opening of . . . → Read More: Facing Autism Symptoms in New Brunswick: Thank You Again Shawn Graham For Helping NB Children With Autism

Facing Autism Disorders in New Brunswick: Autism 2013: Insel’s Autisms or the Oversimplified DSM5 Autism Spectrum Disorder?

“If you’ve met one person with autism – you’ve met one person with autism.” Stephen Shore  The succinct and famous quote by Stephen Shore about the variation and complexity of autism disorders is cited often and just as often ig… . . . → Read More: Facing Autism Disorders in New Brunswick: Autism 2013: Insel’s Autisms or the Oversimplified DSM5 Autism Spectrum Disorder?

Facing Autism in New Brunswick: You Listen Mister: Best Autism Advice This Autism Parent Ever Received

Following is a re-posting of an earlier comment: Irrational Neurodiversity Ideology Harms Children with Autism Disorders. As the title indicates it is my personal opinion, not as a lawyer, which I am, not as a medical professional which I am not. It is my view as an autism parent, of an ideology that I . . . → Read More: Facing Autism in New Brunswick: You Listen Mister: Best Autism Advice This Autism Parent Ever Received

Facing Autism in New Brunswick: Heartless Canada Does It Again – Rejecting Another Immigrant Family Because of Son with Autism

Image by Kaz Novak, The Hamilton Spectator An immigrant South Korean family, Sungsoo Kim, wife Sunmi Kim, daughter Lisa and son Taehoon, have been living in Canada for the past 9 years. A permanent residency application has been rejected  by Canadian officials because the 12 year old son   is autistic.  He  received the autism diagnosis several . . . → Read More: Facing Autism in New Brunswick: Heartless Canada Does It Again – Rejecting Another Immigrant Family Because of Son with Autism

Facing Autism in New Brunswick: What Does Autism Awareness Mean As The Great DSM-5 Autism Do-Over Approaches?

What exactly is Autism Awareness and what does it accomplish?

Can anyone, Autism Speaks, or any other autism organization, say with a straight face that they are promoting autism awareness when the official criteria for determining what autism is, or is not, changes every 15-20 years?  Can anyone say what autism is . . . → Read More: Facing Autism in New Brunswick: What Does Autism Awareness Mean As The Great DSM-5 Autism Do-Over Approaches?

Facing Autism in New Brunswick: Medicare’s Orphans Trailer 1: The Hudson Family Sacrifice for their Child with Autism

This video is the first trailer for Medicare’s Orphans by Medicare for Autism Now! which will examine Canada’s shameful exclusion of autism treatment from Medicare coverage and the consequences for autistic children and their families. It provides a… . . . → Read More: Facing Autism in New Brunswick: Medicare’s Orphans Trailer 1: The Hudson Family Sacrifice for their Child with Autism

Facing Autism in New Brunswick: Confirmation DSM-5’s New Autism Spectrum Disorder Will Exclude Intellectually Disabled

I have written previously that persons who presently have autistic disorder or PDD-NOS and who are also intellectually disabled will be removed from the DSM-5’s New Autism Spectrum Disorder. Whereas those with intellectual disability once constituted … . . . → Read More: Facing Autism in New Brunswick: Confirmation DSM-5’s New Autism Spectrum Disorder Will Exclude Intellectually Disabled

Facing Autism in New Brunswick: TAKEN: BC Government Takes Autistic Girl From Caring Dad

  Derek Hoare shows a picture of himself with his daughter Ayn in happier timesJohn Van Putten Photo The British Columbia government,  Ministry of Children and Family Development, has taken an autistic girl from her father’s care after she w… . . . → Read More: Facing Autism in New Brunswick: TAKEN: BC Government Takes Autistic Girl From Caring Dad

Facing Autism in New Brunswick: Autism and Environmental Pollution: Review Shows Serious Study Needed

EPA, United States Environmental Protection Agency Judith Pinborough-Zimmerman, research assistant professor in the University of Utah’s Department of Psychiatry, has called for more serious study of links between toxic pollution and autism spectr… . . . → Read More: Facing Autism in New Brunswick: Autism and Environmental Pollution: Review Shows Serious Study Needed

Facing Autism in New Brunswick: Medical Model of Autism Embraced by Neurodiversity Blogger Kev Leitch?

– Comment by Neurodiversity Blogger Kev Leitch of LBRB on the recent paper indicating that children have been compensated for what, based on an analysis of the symptoms, appear to have been autism disorders. Neurodiversity, to the extent that it has … . . . → Read More: Facing Autism in New Brunswick: Medical Model of Autism Embraced by Neurodiversity Blogger Kev Leitch?

Facing Autism in New Brunswick: Time Flies And So Does Conor – Dad’s Run Jump Fly Boy

The first two pictures show Conor today at 15 and the last four show him 4 years ago at 11. He is no longer the baby faced boy in the bottom pictures. He is a young man. But … he is still Dad’s Run Jump Fly Boy … full of energy and spir… . . . → Read More: Facing Autism in New Brunswick: Time Flies And So Does Conor – Dad’s Run Jump Fly Boy